Today Lola had an appointment with Dr. Tom Lock who is a developmental pediatrician at Riley Hospital for Children. At this point in the game you sort of go into these appointments with little expectations as it comes as no surprise that Lola is developmentally delayed. But per the suggestion of one of Lola’s therapists, we thought it would be a good idea just to hear what he had to say. Seeing that we blew Lola’s general pediatrician away with our detailed knowledge of her conditions, we felt it would be nice to have someone understand the lingo we were speaking.
Unfortunately we had to wait almost an hour for Dr. Lock to enter in which Lola was not in the mood to be playing anymore. She was tuckered out and quite resistant even though the man actually got on the floor to play with her! I knew right away I was going to like him the second he plopped his rump on the floor to be at her level. He went through her history, her health, her milestones and our concerns. We told him we weren’t actually concerned by anything, but we just wanted one more valuable person on Lola’s Indiana team. He said health wise she is right on target. A tad behind in weight, but nothing alarming. Because she was so tired, she wasn’t able to show off her ability to reach at objects nor was she willing to even play with a toy. She did, however, show off her visual tracking abilities and he was pleased with this given she has a severe vision impairment. He said sure she was behind developmentally, but he felt she was on the right path with all of the therapy interventions. He congratulated us on being such good advocates for Lola and was left with very little to recommend. His only genuine concern was regarding her communication meaning everything from showing interests in objects, reaching for us when she wants us and other communicative approaches. He quickly intervened that a lack in communication often pointed in the autism direction, but at this point he ruled that out for Lola. He was pleased to hear she is easily soothed, has a very mellow mood and shows genuine interest in both Rob and me. He said up until a few years ago visually impaired children were labeled autistic because of their lack in eyesight and communication techniques. In more recent years, health professionals have begun to understand that a visually impaired child simply does not have the same communication techniques as a child with normal vision. While Rob and I would take on another diagnosis such as autism, it was a relief to hear that ruled out. I think three diagnoses is plenty on Lola’s plate.
Rob and I were both very impressed with Dr. Lock and would happily recommend him to any Indiana families seeking out a developmental pediatrician. Lola has an appointment with her new neurologist on Monday, but unfortunately yet fortunately I will be back to work. Rob will be back with a full report on the appointment. We have heard great things about Dr. Zimmer and look forward to hearing what she has to say about our Lola.
I am pleased to announce I have had my first online article published over at www.specialneeds.com. While I never thought I would be a special needs writer/advocate, I happily obliged when the Editor approached me in regards to writing an article. You can find it here. Thank you Cara for allowing me to share Lola’s story.
I leave you with pictures of Lola harassing our dog Zoe as she tried to eat this morning. Lola has just started showing an interest in the dogs and I’m not quite sure they know what to think of it. While we know Lola has a vision impairment, sister is seeing something. Never would she reach at the dogs before and now she can’t seem to get enough of them. Simply amazing Lola!