The New New Neuro

Yesterday Rob took Lola to go see a new neurologist, Dr. Jennifer Zimmer, out of Riley Hospital for Children. You may remember, we were not impressed with the last neurologist and decided to find someone who showed a genuine interest in the care of our daughter. While I was not able to attend due to work commitments, Rob gave me a full detailed report of the appointment. Dr. Zimmer began the appointment by thoroughly examining Lola. The usual measurements were taken (weight, height, head circumference) and then she took a close look at her spine, her feet, her abdomen as well as her eyes. She went through a detailed history of Lola’s background with Rob and asked numerous questions about her care in Costa Rica, the tests that...
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Easter – Last Year

Thinking back to this time last year (a different date due to Easter being much earlier this year) gives me an eerie and chilling feeling. Last year Rob, Lola and I were living in Costa Rica. Rob and I ran a medical hotel that demanded all of our time and certainly all of our energy. But even with the distractions, we began to notice something wasn’t quite right with Lola. While we didn’t know it at the time, for about 10 days prior to Easter we were watching Lola have tiny, but enormously damaging seizures. Lola was never one to make much eye contact nor did she track objects, but her eyesight was diminishing, her smile was fading and the light within began to dim. She stopped progressing...
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A Visit with my Mom

Last week my mom was here for a short five day visit. We had such a good time just catching up, spending time with Lola, eating lots of yummy meals and of course…shopping! While I love the time we got to spend together, it seems to get harder every time we have to say good-bye. For selfish reasons, I wish that she lived closer. I’m at the point in my life where I long to learn about domestic things from my mom such as when to plant perennial bulbs, how to get my grass to grow thicker and how to make my grandmas fried chicken for Rob. We would go on walks throughout the neighborhood and she would point out tips for my future gardening days. It’s those...
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An EEG and an Afternoon

This morning we were up bright and early to head down to Riley Children’s Hospital for Lola’s first EEG in the United States. I had been to two EEG’s with Lola in Costa Rica, so I was interested to see how the two locations would differ. Have you ever seen such a cute pilot before? We were immediately called back and the nurse began to wrap Lola up like a little burrito in order to restrain her arms. Most of you that read this blog know very well Lola does not like any type of restraint (hugs included) therefore we knew it could go one way or the other. Either she would scream and protest or she would actually enjoy it given her early days of being swaddled....
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The Last Phase of PT With Moisés – Lola Must Go to the World

Sadly, today was Lola’s last appointment with Moisés. It was originally scheduled for next week, but Moisés is going to be in Mexico and we didn’t want to reschedule an appointment on one of our last few days in Costa Rica. So today was as good as any. We wanted to bring Moisés a thank you gift, so I headed to this cute little store in Ciudad Colon called Organica. It is a juice/snack bar, but she also sells everything from organic chocolate, hammocks, soaps, teas and a lot of yoga related items. Remembering that Moisés was into yoga, I found him Mala Beads. He was thrilled with the memento and immediately put them on as we told him he was to think of Lola every time he...
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