Life has changed

In the past week, our life has changed drastically which is why we have refrained from blogging.  At one point, I was ready to give up on the blog altogether.  But now I realize that it is a way for our family and friends to see how Lola is doing and it will also become a platform to raise awareness about “Infantile Spasms” or “West Syndrome”.  Each day I will post a picture of Lola, how she is progressing or not progressing and what side effects we are seeing from the medication she is on.  Of course, we will continue to spotlight the little joys that Lola brings us as well.  🙂 This is what we wrote to our family and friends. “We have some important news to...
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