Slow and Steady

My apologies for not keeping up with life with Lola. We recently found out the results from Lola’s first round of genetic testing and those results came back normal. This should be good news, right? Well, it should be good news and I mean it is good news, but what had me in a stricken panic all last week was what has haunted me from the very first time Lola had her first seizure…the unknowns scare the hell out of me. This news rocked me emotionally into someone I hadn’t been in a very long time. In truth, I was a mess. I began to Google, I sobbed uncontrollably, I looked at Lola as if she were a science experiment trying to pinpoint what exactly her diagnosis was...
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Backspacing and Blank Screens

Tonight as I sit here at the computer, I’m telling Rob that I just can’t seem to get my thoughts down in a blog post. It’s as if I have much too share, but every time I begin typing I quickly hit backspace, backspace, backspace until there is nothing but a blank screen again. I suppose this so-called “writer’s block” is running parallel with Lola’s undetermined diagnosis. We had one before and although lissencephaly was a hard diagnosis to swallow…at least we had one. But now Lola’s medical life has taken another unexpected turn when the lissencephaly diagnosis was retracted by a MRI performed here in the U.S. It’s as if someone is hitting backspace and all we are left with is yet another blank screen. I guess...
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A Toddler, an iPad and a bit of Bowling

You’ll have to excuse my absence over the past week, but life seems to get busier by the day. I love posting about our little existence in our corner of the world and I especially love sharing all of the great triumphs that Lola conquers yet some weeks not much goes on that is blogworthy. And rather than bore all of you with our day-to-day “normal” life, I like to save your time and my energy for the goods. I’ve been one tired out mama lately as I’ve been working full-time, caring for a child who is definitely transitioning into the “toddler” phase, making sure my newly semi-disabled husband is trucking along OK and much more in between. I’ve committed to a couple before work work-outs meaning my...
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