A Simple Kind of Day

Just like Christmas and New Year’s, Lola’s birthday was simple, quiet (until the sugar kicked in) and low-key. While I always envisioned throwing over-the-top birthday bashes for my kids – in which I’m sure I will someday – I want them to learn birthdays are about celebrating life and reflecting upon another year of achievements. The status quo seems to be “bigger is better”, but we prefer simplistic and meaningful and that’s precisely what Lola’s birthday was this year. Sure she received presents and we sang ‘Happy Birthday’ ten thousand times and she ate an ungodly amount of sugar, but more than all of that, we showered her with kisses, hugs and so much love. Maybe as she gets older she’ll prefer to have an MTV-style Sweet Sixteen...
Continue reading...

An IEP Success Story

When you have a child with special needs, you are aware and ultimately prepared about the early childhood education intake process. First the public schools are notified when a child in their district is almost three years old and that child has some type of delay (physically, cognitively, speech, language, etc). Mandated by the Individuals with Disabilities Education Act (IDEA), the child must be evaluated by the public school system in an effort to put that child in the most appropriate school setting as well as offered in-school therapeutic services – if a child qualifies – under what is called an Individualized Education Program (IEP). The IEP is specifically designed for the child by a team of professionals at the school. It not only ensures the child has...
Continue reading...

Surviving “Ravaging Toddler Flu” Season

Lola's IEP Meeting

Let’s face it…if you have a child in school or even a daycare setting then every year around this time you start to prepare yourself for the cold/flu season. I naively thought Lola was one of the healthiest kids I’d ever been around. During her entire first year of life in Costa Rica, she may have had only one cold. I thought because we actually exposed her to life and didn’t sanitize her entire existence that we had sort of one upped her susceptibility to viruses. But that all changed when we moved back to the United States. I realized she just didn’t have exposure to the germs associated with kids because she was never really around them. And then she began preschool this fall and then came...
Continue reading...

You Don’t Get to ‘Ding’ My Kid

Unfair to judge placement

×Warning: Not suitable for young readers as this post may will contain profanity. Please bear with me folks. I just need to get this off of my chest. Not only for my sake, but for parents/grandparents/caregivers to realize that certain actions, verbiage and projections by others (even if they are so-called professionals) are simply unacceptable. Period. Last week Lola had her evaluation by the public school system. This evaluation was for therapists, teachers and other special education professionals to be able to determine what services/goals are appropriate for Lola as she enters preschool when she turns three years old. Now this evaluation took place on a Thursday, Lola was just getting over being incredibly sick so I knew the evaluation would be skewed because she just wasn’t feeling...
Continue reading...

A Halt, But We’re Moving Forward

Thanks for contacting Say Hola Lola!

Last Tuesday Lola had her 24 hour video EEG at Riley Hospital for Children. You may remember, Lola had one last year as well so unfortunately we were no strangers to this long procedure. The hope in monitoring Lola’s brain activity was to help give us the reassurance we needed to start a wean off of her anti-seizure medication, Trileptal. Yet sadly, we did not get the news we had hoped for this time around. Last year, Lola was having abnormal spikes in her brain which we were told could potentially lead to seizures. Per the suggestion of her neurologist, Dr. Zimmer, we decided to keep her on the Trileptal for another year just to be safe. Her body was doing a slow wean anyways due to her...
Continue reading...