A Visit, a Tear and a lot of Lessons

On Saturday, we had the pleasure of having Rob’s mom come to visit for a couple of nights. While I know many people gasp at the thought of their mother-in-law coming to visit, I on the other hand welcome Kathy with wide open arms. I could go on and on about what an amazingly special woman she is, but I’m trying to coerce her into writing a post about her time with Lola. I have a feeling if she chooses to share her thoughts, you will quickly see how angelic she is. The weekend was spent just catching up, eating good food, Kathy showering us with awesome Christmas goodies and she was able to give Lola lots of grandma love. Unfortunately I had to work most of the
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Phase Twelve of PT – Balancing the Equilibirum

Seeing that Lola had the cluster of seizures at last Saturday’s OT appointment with Melissa, we were asked to come back and try again. This week Melissa wanted to work on Lola’s equilibrium in an effort to help Lola find her balance when she is trying to sit unassisted. Lola understands to put her hands down as protection if she falls forward, but falling backwards is a whole other thing. She likes it. She thinks it’s fun. I know Moisés said to let her fall and perhaps I am being that overbearing mother, but Melissa even agreed that falling on a hard mat is not safe. Especially with the seizures happening last week. When we get to Indy, she’ll have a room with carpet so I’ll let her
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Lola Just as a Baby

I thought it would be good to write about Lola just as a baby. Not as a baby with West Syndrome, not as a baby with cortical visual impairment, not as a baby with some delays. Just a baby. Food: Lola has turned into a ravenous beast when it comes to food. It is crazy to think she was once on the “failure to thrive” line because the girl eats like a horse now. We don’t know what percentile she is in, but we know she is continuing to gain weight. Since her neuro is like our pediatrician, we don’t go to an actual pediatrician anymore. She can’t have vaccinations and Dr. Luna always measures her so there really is no point. The last at home weigh in
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