Currently viewing the tag: "seizures"
Celebrating Me is Celebrating Being Lola’s Mom
By Meredith On May 15, 2013 · Leave a Comment · In Blog, Cortical Visual Impairment, Family, Happiness, indianapolis, Infantile Spasms, Milestones, Parenting, Seizures, Special Needs, West Syndrome
For me, Mother’s Day began on Saturday this year as I was scheduled to work on Sunday. Really, I feel like it’s Mother’s Day every day as my wonderful husband is always sure to make me feel special no matter if it is a holiday or not. Saturday felt like a crisp fall day rather [...]
I should be posting about what a rock star my kid is and how she continues to amaze me every single day, but truth be told…I’ve got some serious house hunting to do. And besides…you all know how cool she is! Just a few pictures to share this week and I’ll be back soon with [...]
The Neurogeneticist
By Meredith On January 30, 2013 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Costa Rica, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs
“Amazing!” “Fantastic!” “Lucky!” These were among the promising words the neurogeneticist said to us on Friday as he discussed Lola’s undiagnosed condition. I remember asking Rob on Thursday (the night before the appointment) if he felt worried about what we’d find out. And ever so calmly, he said he didn’t feel worried at all and [...]
The Results
By Meredith On November 14, 2012 · Leave a Comment · In Blog, Cortical Visual Impairment, indianapolis, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
On Monday morning, without hesitation I called Lola’s neurologist in hopes to find out the results from her 24 hour Video EEG (VEEG). If you haven’t noticed, I am not a very patient person when it comes to my daughter and the healthcare industry. I want her to be as much of a priority to [...]
Just Be Honest
By Meredith On July 6, 2012 · Leave a Comment · In Baby, Cortical Visual Impairment, Friends, Happiness, Infantile Spasms, low vision, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
Blame it on the heat, but all I want to do these days is stay inside, put my jammies on early and snuggle with my little babe. You know you’re getting old when you are excited to have nothing to do on a Friday night except hang with your kid. Too bad it’s just after [...]
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