Only One More Left

Thursday my mom drove Lola and me to therapy with Moisés. It is hard to believe we only have one more session left with him. I’ve been a bit emotional lately and I was in tears telling him how much he has meant to our family. The physical strength and transformation we have seen in Lola is all thanks to Moisés. You could see the happiness he felt knowing how far Lola has come. His quote of the day was “she’s doing so great” which of course was like music to our ears. Lola spent most of the time vertical in what Moisés calls the “ligas”. This is crucial for Lola’s balance and it helps for her to understand the feeling of being upright. She did amazing! She...
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Phase Twelve of PT – Balancing the Equilibirum

Seeing that Lola had the cluster of seizures at last Saturday’s OT appointment with Melissa, we were asked to come back and try again. This week Melissa wanted to work on Lola’s equilibrium in an effort to help Lola find her balance when she is trying to sit unassisted. Lola understands to put her hands down as protection if she falls forward, but falling backwards is a whole other thing. She likes it. She thinks it’s fun. I know Moisés said to let her fall and perhaps I am being that overbearing mother, but Melissa even agreed that falling on a hard mat is not safe. Especially with the seizures happening last week. When we get to Indy, she’ll have a room with carpet so I’ll let her...
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A Letter from Moisés

I can’t put into words how much we are going to miss Moisés (Lola’s PT)! He has such a big heart and he works so well with Lola. I wrote to him explaining Lola’s new diagnosis and this was his response (I google translated it as it was in Spanish): Hi Meredith: First of all a big hug for you Lola. I did not answer yesterday because I had to speak with Dr. Moon first. He explained what he saw on the exam. I think that is good news. First, if the rest of the brain is normal, that’s great and good news, we will be many opportunities to work on your development box to a normal life. Second, the injury is reduced only to the occipital lobe,...
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Nine Months Old and Creeping

Dear Lola, Today you turn nine months old! I was going to write a long, sappy love letter to you as I normally do each month, but you did something miraculous yesterday and I think it’s pretty important. Yesterday baby girl, you began to creep backwards! We were told that you would maybe be creeping by Christmas, but clearly you have an agenda of your own. Your will and determination always amaze me and every time I question if I can accomplish something. . . I simply think of you. I know you have never given up and I promise I will always follow in your footsteps. Some day I will explain the importance of this video, but until then we’ll just show everyone else what an amazing...
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Phase Eleven of PT – Perception of Reality

Yesterday Melissa (Lola’s occupational therapist) spent the first part of the session explaining to us the next phase of therapy. I’ll be honest and say that some of it was jumbled up in translation, but we were able to understand that Lola is to learn the concept of the perception of reality. It is a three part process that includes physical, emotional and cognitive aspects. Melissa told us they generally begin this type of therapy at six months, but because of Lola’s vision problem she felt it best to focus on Lola’s eyesight instead. Melissa began by showing Lola a toy that made sound. She wanted to familiarize Lola with it not only by sight, but also by the noise it made. Melissa then took a dark colored...
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