A Visit, a Tear and a lot of Lessons

On Saturday, we had the pleasure of having Rob’s mom come to visit for a couple of nights. While I know many people gasp at the thought of their mother-in-law coming to visit, I on the other hand welcome Kathy with wide open arms. I could go on and on about what an amazingly special woman she is, but I’m trying to coerce her into writing a post about her time with Lola. I have a feeling if she chooses to share her thoughts, you will quickly see how angelic she is. The weekend was spent just catching up, eating good food, Kathy showering us with awesome Christmas goodies and she was able to give Lola lots of grandma love. Unfortunately I had to work most of the...
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“Normal” Never Sounded so Good

Well first off we have BIG news to share…Lola’s EEG came back normal! Thankfully there were no signs of seizure activity which means that either the medicine is working or Lola is simply not having seizures. It is too soon to wean her off of the Trileptal as seizures could still do significant damage, but the fact that she is still seizure free is an excellent sign. We were told the doctor would call if she wanted Lola to have a 24 hour EEG to determine if Lola is having seizures as she sleeps, but the fact she hasn’t called yet leads me to believe that Lola is simply living a seizure free life. We are incredibly grateful for all of the extra love and prayers you sent...
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Therapy Began

I had been anticipating Tuesday since we said our good-byes to Moises (Lola’s Costa Rican PT) this past November. I worried Lola would fall behind without the help of Moises and Melissa as we simply didn’t know what was to lie ahead in her future yet we knew we were seeing something awaken within Lola thanks to their team. So the long drawn out process it took for Lola to get approved for First Steps was agonizing. But then something happened I didn’t expect (and shame on me for not thinking so)…Lola began to blossom developmentally without the help of any therapist or team. She just started to get it. She taught herself how to sit up on her own, how to sit up from the lying down...
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First Steps Evaluation

In the world of a one year old, they don’t know that it is actually their birthday. They may understand that their parents are ridiculously cheesy for some reason, they may be excited about the presents they get to open and they will especially love the cake they get to indulge in, but for the most part…it’s just another day. So when we were asked if today would be a good day to have the therapists come out to evaluate Lola, we happily replied “yes”. Two therapists came to our house at 10:30 this morning to take a look at Lola. They simply wanted to observe her as she played all while asking us numerous questions regarding Lola’s life. We told them all about Lola’s long medical history...
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The Last Phase of PT With Moisés – Lola Must Go to the World

Sadly, today was Lola’s last appointment with Moisés. It was originally scheduled for next week, but Moisés is going to be in Mexico and we didn’t want to reschedule an appointment on one of our last few days in Costa Rica. So today was as good as any. We wanted to bring Moisés a thank you gift, so I headed to this cute little store in Ciudad Colon called Organica. It is a juice/snack bar, but she also sells everything from organic chocolate, hammocks, soaps, teas and a lot of yoga related items. Remembering that Moisés was into yoga, I found him Mala Beads. He was thrilled with the memento and immediately put them on as we told him he was to think of Lola every time he...
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