Currently viewing the tag: "partial lissencephaly"
The First Step with First Steps
By Meredith On December 21, 2011 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Occupational Therapy, pachygyria, Parenting, Physical Therapy, Seizures, West Syndrome
Yesterday the intake coordinator for First Steps came out to the house to enroll Lola in the program. First Steps is an early intervention program that is funded by the State although you are required to pay something based on your income (if not covered by insurance). They believe that every child (from birth to [...]
The Last Phase of PT With Moisés – Lola Must Go to the World
By Meredith On November 18, 2011 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Motherhood, Parenting, Physical Therapy, West Syndrome
Sadly, today was Lola’s last appointment with Moisés. It was originally scheduled for next week, but Moisés is going to be in Mexico and we didn’t want to reschedule an appointment on one of our last few days in Costa Rica. So today was as good as any. We wanted to bring Moisés a thank [...]
“Inchstones”
By Meredith On November 14, 2011 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, pachygyria, Parenting, Seizures, West Syndrome
“Is Lola {blank} yet?” I get a lot of this question. And I mean a lot. Is she crawling? Is she sitting? Is she talking? At first this question kind of stung and I would get very defensive for the sake of my daughter. Now I simply reply with “No she isn’t yet, but this [...]
Ultima Cita con Melissa
By Meredith On November 7, 2011 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Occupational Therapy, Parenting, West Syndrome
On Saturday we had our last appointment with Melissa and I must admit it was pretty sad. She was probably wondering why I was teared up, but Melissa and Moisés have done wonders for Lola. They truly are the reason for Lola’s amazing progress. Sure we ourselves work with Lola all day long, but it [...]
Halloween and Happiness
By Meredith On October 31, 2011 · Leave a Comment · In Baby, Costa Rica, Infantile Spasms, lissencephaly, Milestones, Motherhood, pachygyria, Parenting, West Syndrome
I know we’ve been absent for a few days, but Rob and I have begun the tedious task of preparing to move. While we still have a month before we board that plane back home, we would like to actually enjoy our final weeks with our family and friends rather than scrambling around to get [...]
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