Well, That’s Surprising News

It’ll be two years in August since Lola showed her first sign of a clinical seizure — at least we thought it was a seizure. We had just left the dentist’s office and Lola was still recovering from the trauma of the appointment. I noticed her exhibiting some very strange behavior through my rear-view mirror. She hadn’t had a seizure in a couple of years, but like any parent of a child with epilepsy, I was always prepared for when that seizure-free streak could end. I pulled over and immediately began to videotape the episode which you will see below. I sent it on to Lola’s neurologist and while she wasn’t fully convinced it was a seizure, rather than having Lola endure yet another EEG, we put her...
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Come Stroll Down Memory Lane – A Birthday Post

Warning! Plethora of pictures! I’m almost a month late with the Lola birthday post, but that seems to be the story of my life lately. Lola turned five-years-old on January 4th and I’m still pinching myself with disbelief! I’ve had so many emotions with this birthday and I can’t seem to figure out why. There’s something about five that says she’s well on her way to school dances, shaving her legs, screaming “I hate you” and everything else teenage-related. All right so I’m getting a bit ahead of myself, but she’s getting bigger which scares the hell out of me yet makes me look forward to all of the good stuff that’s just right around the corner. Five years ago, I was afraid for her future. I didn’t...
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Holiday Happiness

Creating a memorable Christmas takes a lot of work. With each Christmas that comes and goes, it seems even more work goes into making the holiday magical, but in all honesty, I love each and every minute of it. With each passing Christmas comes new memories created with traditions that Rob and I are putting into place. As I sit here looking through pictures from the last month, I’m reminded just how special we try to make it for our children. And part of me can’t help but wonder if we aren’t making it special for ourselves as well. Perhaps we are trying to re-create a feeling we miss from our own childhoods. I’ll probably say it year after year, but this Christmas was my favorite thus far...
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Thanksgiving Perspective

I think being a mom of a child with exceptional needs has given me a unique perspective on being thankful. While I’m thankful for all of my blessings on this Thanksgiving, I find that I’m equally as thankful each and every day of the year. It’s nice to have an entire day to ponder the meaning behind gratitude and how it weaves itself into my daily existence because I am indeed very grateful. But as a mother, a wife and, more importantly, a woman, I try to honor the things I’m thankful for all year round…and these two are at the top of that list. Lola has taught me to appreciate in a different way and embrace all that life has to offer. Because I surround myself with...
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Halloween Can Be ‘Tricky’

What a bizarre holiday you are, Halloween. 364 days a year we teach our children not to talk to strangers, not to go up to stranger’s homes and never to take candy from a stranger. Yet on this one day a year, all rules are obsolete. Instead we say, “Hey kids! Go ahead and talk to strangers. Go right up to their homes. And why yes, by all means, eat their candy!” For young children and especially children with special needs — it can be quite confusing. Last year the weather was dreadful in Indianapolis. It was sleeting, it was cold and there was no way I was going to make my then 3-year-old and 10 month old endure Trick-or-Treating. This year I really wanted both Lola and...
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