Lola Just as a Baby

I thought it would be good to write about Lola just as a baby. Not as a baby with West Syndrome, not as a baby with cortical visual impairment, not as a baby with some delays. Just a baby. Food: Lola has turned into a ravenous beast when it comes to food. It is crazy to think she was once on the “failure to thrive” line because the girl eats like a horse now. We don’t know what percentile she is in, but we know she is continuing to gain weight. Since her neuro is like our pediatrician, we don’t go to an actual pediatrician anymore. She can’t have vaccinations and Dr. Luna always measures her so there really is no point. The last at home weigh in...
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My biggest downfall as a parent. . .

… is and will be letting go. While I vowed that I wouldn’t let Lola fall asleep with her pacifier, this seems to be her new comfort tool when lying down for naps and occasionally at night as well.  There is something about that thing that just relaxes her.  The other night she wouldn’t nurse down and I thought maybe she wasn’t tired.  Well she was darn near scratching her eyes out which led me to believe that she was indeed ready for bed.  I hesitantly offered her the pacifier and sure enough that was what she wanted.  I sadly watched as she suckled away and stared off into space.  What happened to me being the one who put her to sleep?  I can’t help but laugh at...
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Random things I have learned

So there is only so much that a book can teach you about when it comes to what to expect with a baby.  While books, the Internet, other blogs, family and friends have great information many aspects of taking care of a baby are done by learning for yourself.  Here are just a couple of random tips that I thought I would share. If you are nursing while lying down in bed – make sure to put something down under the baby’s head so that your sheets don’t smell like breast milk.  I use a burp cloth.  It is thick enough that it absorbs the excess milk that leaks from Lola’s mouth, easy to wash and it doesn’t bunch up easily. Some may not agree, but when it...
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My sous chef

I took Lola over to the hotel kitchen today so she could be my sous chef while I prepped for dinner. All was fine and dandy and then… the Popeye face came out. When she begins to close that right eye, I know all hell is about to break loose. If only she’d quit playing the “I’m gonna spit the pacifier out and see how many times you’ll put it back in my mouth” game. How can she be so talented by burping, hiccuping and farting all at the same time (she must get that from her father), but she can’t keep that darn pacifier in her mouth for longer than 3 minute intervals?! I think she just likes messing with me… another trait she gets from her...
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The Great Pacifier Debate cont’d

Here’s where I’m at with the pacifier and Lola. For the last few weeks I have had an internal battle with “do I give her the pacifier or not?”. I was driving not only myself crazy, but also my husband. Hell, I probably even confused Lola with the pacifier. At first, she simply didn’t take the pacifier. On the rare occasion that she would take it, she would fall asleep with it, I’d take it out and then she’d wake up frantically looking for it. She wasn’t napping well and so I told Rob we were done with it. But then throughout the day she’d get fussy, I’d give her my breast and she would calm down. Well that’s all and great, but now I’m back working and...
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