Currently viewing the tag: "pachygyria"
The New New Neuro
By Meredith On May 1, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, pachygyria, Seizures, West Syndrome
Yesterday Rob took Lola to go see a new neurologist, Dr. Jennifer Zimmer, out of Riley Hospital for Children. You may remember, we were not impressed with the last neurologist and decided to find someone who showed a genuine interest in the care of our daughter. While I was not able to attend due to [...]
Improvements and Much “More”
By Meredith On March 2, 2012 · Leave a Comment · In Baby, Happiness, Infantile Spasms, lissencephaly, Milestones, Motherhood, Occupational Therapy, pachygyria, Parenting, Physical Therapy, West Syndrome
Lola girl is finally over her first cold and the second top tooth is ever present which means…our happy baby is back! We have witnessed such changes in Lola this past week. There is a level of awareness that is emerging in really all aspects of her life. She is becoming aware of her body [...]
In All Honesty
By Meredith On February 24, 2012 · Leave a Comment · In Baby, Blog, Infantile Spasms, lissencephaly, Motherhood, pachygyria, Parenting, West Syndrome
Last night my mind wandered off to a place I hadn’t allowed in to go in a long time…I began to think about the far distant future for my Lola. Yesterday Rob, Lola and I went to the Developmental Disability building to fill out an application for a waiver in an effort to make sure [...]
Therapy Began
By Meredith On February 9, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Occupational Therapy, pachygyria, Parenting, Physical Therapy, Seizures, West Syndrome
I had been anticipating Tuesday since we said our good-byes to Moises (Lola’s Costa Rican PT) this past November. I worried Lola would fall behind without the help of Moises and Melissa as we simply didn’t know what was to lie ahead in her future yet we knew we were seeing something awaken within Lola [...]
The Tour and the Neuro
By Meredith On February 1, 2012 · 1 Comment · In Baby, Infantile Spasms, Motherhood, pachygyria, Parenting, Seizures
Yesterday Lola and I went with a close friend to visit the Indiana School for the Blind and Visually Impaired (ISBVI). I was warned up front that many times emotions can get the best of parents (mothers especially) as the school has children on all different levels of the visual spectrum. I hesitantly thought about [...]
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