A Quick Update

My oh my…where to begin? So much has happened during my absence…so many good things to share. In that short time, we have sold our beloved home in Butler-Tarkington, we bought a new house in the Irvington area (a really cool, urban, community-driven neighborhood), we moved (I’m so proud of my husband for moving us himself) and we have been enjoying each and every moment in making this new place our home. I will post pictures soon and will share all of the joys of this new place, but for now I wanted to tell you about the little girl that you all come back here to read about…our Lola. How is Lola? If just one word could describe her, it would be: awesome. Last night as Rob...
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In Other’s Words

Is everyone ready for Christmas? Or Kwanzaa? Or Hanukkah? Or whatever it is that you might celebrate! We just finished up opening our presents this evening as we are off to visit my in-laws for Christmas. It couldn’t have felt more right being in our own home, playing our traditional Vince Guaraldi Charlie Brown Christmas and learning about Christmas traditions from each others past. Lola was more interested in opening the cabinets in the kitchen rather than opening her presents, but we still enjoyed ourselves nonetheless. I’ll post pictures of our evening when we return, but I wanted to give you all an update on our girl. Tonight This morning (I fell asleep hands on keyboard and all last night) I thought I would do something different and...
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Slow and Steady

My apologies for not keeping up with life with Lola. We recently found out the results from Lola’s first round of genetic testing and those results came back normal. This should be good news, right? Well, it should be good news and I mean it is good news, but what had me in a stricken panic all last week was what has haunted me from the very first time Lola had her first seizure…the unknowns scare the hell out of me. This news rocked me emotionally into someone I hadn’t been in a very long time. In truth, I was a mess. I began to Google, I sobbed uncontrollably, I looked at Lola as if she were a science experiment trying to pinpoint what exactly her diagnosis was...
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A Visit with my Mom

Last week my mom was here for a short five day visit. We had such a good time just catching up, spending time with Lola, eating lots of yummy meals and of course…shopping! While I love the time we got to spend together, it seems to get harder every time we have to say good-bye. For selfish reasons, I wish that she lived closer. I’m at the point in my life where I long to learn about domestic things from my mom such as when to plant perennial bulbs, how to get my grass to grow thicker and how to make my grandmas fried chicken for Rob. We would go on walks throughout the neighborhood and she would point out tips for my future gardening days. It’s those...
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“Normal” Never Sounded so Good

Well first off we have BIG news to share…Lola’s EEG came back normal! Thankfully there were no signs of seizure activity which means that either the medicine is working or Lola is simply not having seizures. It is too soon to wean her off of the Trileptal as seizures could still do significant damage, but the fact that she is still seizure free is an excellent sign. We were told the doctor would call if she wanted Lola to have a 24 hour EEG to determine if Lola is having seizures as she sleeps, but the fact she hasn’t called yet leads me to believe that Lola is simply living a seizure free life. We are incredibly grateful for all of the extra love and prayers you sent...
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