Finding Her Person

For most of us, some of our fondest memories are ones we have shared with our friends. At an early age, we are placed in situations that enable us to make friends. Play dates, Mommy & Me classes, going to a daycare and eventually school. These are all ways we are encouraged to go out and be social amongst others. As parents, we will go on to teach our children about the importance of friendship because we know having good friends is vital to the soul. After Lola was born and before the rollercoaster of health issues came to fruition, I sought out a group of women who had babies. It was a way for my daughter to begin socializing and it was key to maintaining my sanity...
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Sibling Rivalry is Driving Mom Crazy

Can I be honest with you? Yesterday may have been one of my worst days as a mom ever. Yep. Ever. What is it that makes some days tolerable and other days quite the opposite — dare I say abhorrent? But yesterday was just one of those days where I could do no right as a mom. Sebastian could have been a third walking leg as he never once let me go. Lola was upset that Sebastian was attached to me. Her inability to verbalize her unhappiness made her throw even louder tantrums. Her tantrums made Sebastian scream even louder. Those screams made me want to scream, but instead all I could do was just sob and pray that the day would end soon. I’m thankful I have...
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Happy Birthday Lola!

Image Credit Dear Lola, Today, my darling sweet girl, you are four years old. Four years ago, you came into this world with your own agenda — to make it a better place. And you’ve done just that. You inspire strangers and impress everyone who knows you. You have been handed challenges, but the way you gracefully navigate through them without fuss make your challenges seem unimportant. You are a fighter. Your ability to persevere even when life knocks you down is a trait you developed on your own. I wish I could take credit for this, but lord knows Mommy isn’t as strong as you baby girl. But you make me stronger each and every day. You help me realize spontaneity is an unappreciated characteristic of life....
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NR2F1

NR2F1. This combination of five letters and numbers meant absolutely nothing to me until a few weeks ago. Now those five letters and numbers have given us the answer to, “Why Lola?” They are the sole reason why the course of Lola’s life changed so drastically. They are the letters and numbers making up a long awaited diagnosis. When I first received the call from neurology informing me a diagnosis had been found, I was elated. I quickly called Rob, my mom, sent out texts, posted on Facebook and Instagram. I was ecstatic. We finally knew what exactly we were up against. The main symptoms were optic atrophy (Lola has CVI and small optic nerves) and intellectual disability (she is globally delayed). We would have to keep an...
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