And Of Course, a Lola Update

Lola has been one busy little girl which means that makes us busy by default. I’ve said it before and I’ll say it again, to us Lola is just Lola. Sure we know she has challenges and quirks, crazy schedules and many appointments, medicines and much much more but that is the life of our little girl. It’s the only life with a child that we know. When I don’t post about Lola, it’s simply because Lola is just busy being a typical toddler. She’s sassy and hornery. She is on a food strike where all she wants is peanut butter sandwiches and crunchy snacks. She throws fits because she can’t voice what she wants which has led us to believe that “the terrible twos” really do exist....
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The Results

On Monday morning, without hesitation I called Lola’s neurologist in hopes to find out the results from her 24 hour Video EEG (VEEG). If you haven’t noticed, I am not a very patient person when it comes to my daughter and the healthcare industry. I want her to be as much of a priority to others as she is to me and I’ve had to realize that there are just certain things (like test results) that can’t be rushed. I spent the morning at work anxiously waiting for the call and it finally came…but unfortunately it was Dr. Zimmer’s nurse and not Dr. Zimmer herself. I’ll come back to why this differentiation is so important. The nurse said she had the preliminary results, but Dr. Zimmer was still...
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Backspacing and Blank Screens

Tonight as I sit here at the computer, I’m telling Rob that I just can’t seem to get my thoughts down in a blog post. It’s as if I have much too share, but every time I begin typing I quickly hit backspace, backspace, backspace until there is nothing but a blank screen again. I suppose this so-called “writer’s block” is running parallel with Lola’s undetermined diagnosis. We had one before and although lissencephaly was a hard diagnosis to swallow…at least we had one. But now Lola’s medical life has taken another unexpected turn when the lissencephaly diagnosis was retracted by a MRI performed here in the U.S. It’s as if someone is hitting backspace and all we are left with is yet another blank screen. I guess...
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