The MRI

This morning Lola had a MRI at Riley Hospital for Children in Downtown Indianapolis in hopes to get clearer images so that an accurate diagnosis can be made. While the actual diagnosis doesn’t change much of anything in regards to her treatment and therapies, it is still necessary to know. Lola’s neurologist in Costa Rica diagnosed her with Isolated Lissencephaly in the occipital lobe. The first neurologist Lola saw here in Indy thought it was more Pachygyria than Lissencephaly. And Lola’s current neurologist simply said she wasn’t going to put her name behind any diagnosis without better images. So a diagnosis needs to be made which is why we agreed to subject Lola to another MRI. The girl handled it like a champ though. In fact, I think...
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Another MRI and Another Visit

On Wednesday we received a phone call from Lola’s new neurologist, Dr. Jennifer Zimmer. She personally called herself to tell us the MRI CD from Costa Rica was simply too hard for the radiologists to read. This means Lola will indeed have to have another MRI as Dr. Zimmer doesn’t want to give Lola an official diagnosis without it. While we had hoped the MRI was readable as another MRI means Lola will be going under general anesthesia, it will be good to have images from a much more advanced MRI machine. But what I found simply astonishing was that Dr. Zimmer called herself to relay this news to us. I am so glad we sought out another neurologist as Dr. Zimmer is exactly who we were looking...
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Gmail Chat – You Suck!

Call me weird, but I like to remain “invisible” on Gmail chat because. . . well because I don’t like being that available. I like to see who’s on just in case I might feel up for chatting, but I don’t like that green symbol by my name screaming “talk to me”. I guess I’m not spontaneous enough for conversations that I don’t have planned. Whatever – even writing this makes me realize what a weirdo I am. But anyway, this weekend I’ve noticed that Lola’s neurologist, Dr. Luna is online and available to talk. Seeing that I’ve not heard from him regarding Lola’s MRI results, I have quickly added that green symbol in hopes that he would see it and think “hey – I should tell that...
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The Waiting Game

Let me just start by saying it should be a crime to have a baby fast! The hospital originally said Lola needed to fast for six hours, but after I reminded them that she wasn’t even nine months old, they quickly said four hours would be sufficient enough. At 2:30 pm, I fed Lola solids until she wouldn’t eat them anymore. And at 3:30 pm, I tried to give her a bottle only for her to eat one ounce. So I knew the next four hours would be difficult as she is used to eating every few hours. At around 6:00 pm, she began to get quite fussy. We continued to change the environment (inside vs outside), we played, we sang, we did everything we could to get...
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