The Happy Baby and Mommy are Back

We skipped out on therapy with Melissa on Saturday as Lola already has a large amount of daily OT on her plate. The past few therapy sessions have seemed a bit repetitive therefore we felt it was best for Lola to stick with what she is already doing. Last week the girl was in a funk (must have felt the energy from her mother!). I’m guessing the teething combined with the increase in medication just took our happy little babe away. But that jubilant smile has returned along with an early sign of the first top tooth! She has been crazy active and she simply wants to chat all day long. It is such a beautiful sound. Last week we began to give Lola fish oil. We are...
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Life has changed

In the past week, our life has changed drastically which is why we have refrained from blogging.  At one point, I was ready to give up on the blog altogether.  But now I realize that it is a way for our family and friends to see how Lola is doing and it will also become a platform to raise awareness about “Infantile Spasms” or “West Syndrome”.  Each day I will post a picture of Lola, how she is progressing or not progressing and what side effects we are seeing from the medication she is on.  Of course, we will continue to spotlight the little joys that Lola brings us as well.  🙂 This is what we wrote to our family and friends. “We have some important news to...
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