Currently viewing the tag: "Infantile Spasms"
Celebrating Me is Celebrating Being Lola’s Mom
By Meredith On May 15, 2013 · Leave a Comment · In Blog, Cortical Visual Impairment, Family, Happiness, indianapolis, Infantile Spasms, Milestones, Parenting, Seizures, Special Needs, West Syndrome
For me, Mother’s Day began on Saturday this year as I was scheduled to work on Sunday. Really, I feel like it’s Mother’s Day every day as my wonderful husband is always sure to make me feel special no matter if it is a holiday or not. Saturday felt like a crisp fall day rather [...]
The Neurogeneticist
By Meredith On January 30, 2013 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Costa Rica, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs
“Amazing!” “Fantastic!” “Lucky!” These were among the promising words the neurogeneticist said to us on Friday as he discussed Lola’s undiagnosed condition. I remember asking Rob on Thursday (the night before the appointment) if he felt worried about what we’d find out. And ever so calmly, he said he didn’t feel worried at all and [...]
The Results
By Meredith On November 14, 2012 · Leave a Comment · In Blog, Cortical Visual Impairment, indianapolis, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
On Monday morning, without hesitation I called Lola’s neurologist in hopes to find out the results from her 24 hour Video EEG (VEEG). If you haven’t noticed, I am not a very patient person when it comes to my daughter and the healthcare industry. I want her to be as much of a priority to [...]
Yes – Neurologists Really do Smile!
By Meredith On October 4, 2012 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, indianapolis, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
Just when I was starting to get into my groove on Wednesday’s, I have already had to change up my beloved schedule. While I normally work on Mondays, I took the day off so I could be at Lola’s neurologist appointment with Dr. Zimmer. I have finally come to terms that I am indeed the [...]
Slow and Steady
By Meredith On August 30, 2012 · Leave a Comment · In Baby, Blog, Infantile Spasms, low vision, Milestones, Motherhood, Occupational Therapy, Parenting, Physical Therapy, Seizures, Special Needs, West Syndrome
My apologies for not keeping up with life with Lola. We recently found out the results from Lola’s first round of genetic testing and those results came back normal. This should be good news, right? Well, it should be good news and I mean it is good news, but what had me in a stricken [...]
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