A Quick Update

My oh my…where to begin? So much has happened during my absence…so many good things to share. In that short time, we have sold our beloved home in Butler-Tarkington, we bought a new house in the Irvington area (a really cool, urban, community-driven neighborhood), we moved (I’m so proud of my husband for moving us himself) and we have been enjoying each and every moment in making this new place our home. I will post pictures soon and will share all of the joys of this new place, but for now I wanted to tell you about the little girl that you all come back here to read about…our Lola. How is Lola? If just one word could describe her, it would be: awesome. Last night as Rob...
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Enough About Me

How is Lola? Lola is awesome! I swear she learns something new every single day and we sit back just in awe of every little thing she accomplishes on her own. Sure we push her with therapeutic tools, but sometimes with developmentally delayed kids you have to just take a step back and let them flourish. Remember that line from my favorite children’s book, Leo the Late Bloomer? “A watched bloomer doesn’t bloom.” Well I whole-heartedly believe it to be true. She’ll get it when she’s ready and able. She may not be average on a developmental growth chart, but she’s still developing and that’s what matters. Plus average is such a mediocre term. Lola has this strong fascination with large objects such as doors, dressers, entertainment centers...
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Our Week

This past week has been a rough one for poor little Lola. I guess I should say it has been a rough week for both Lola and Rob. Lola’s first top tooth has finally made its appearance, but damn has it been painful for her. She has wanted nothing but to be near one of us and, surprisingly, another side effect of her teething has been an incredible increase in hunger. We recently began the transition from formula to whole milk, but it really hasn’t been a transition at all as she simply loves milk! She went from drinking three to four bottles of formula a day to now at least five to six bottles of milk along with at least two full solid meals and an ungodly...
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“Inchstones”

“Is Lola {blank} yet?” I get a lot of this question. And I mean a lot. Is she crawling? Is she sitting? Is she talking? At first this question kind of stung and I would get very defensive for the sake of my daughter. Now I simply reply with “No she isn’t yet, but this is what she is doing.” When Lola was diagnosed with cortical visual impairment, I joined a Facebook group called “Thinking Outside the Light-Box: Vision Therapy Support Group” per the advice of my virtual friend, Amanda. It is a place where parents of children with CVI can go to share ideas about vision therapy exercises, equipment or aids that are helpful and most importantly it is a “safe place” where we can openly ask...
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