Currently viewing the tag: "hope"
Same Story, Different Doctor
By Meredith On June 11, 2012 · 1 Comment · In Baby, Cortical Visual Impairment, low vision, Milestones, Motherhood, Parenting, Special Needs
Today Lola went back to yet another pediatric ophthalmologist…this was now her third. Dr. Zimmer wanted an opinion from Riley Children’s Hospital in hopes to find answers regarding Lola’s low vision. Dr. Zimmer thought the recent MRI results gave no indication as to why Lola would have an impairment. Just as we suspected, Lola’s eyes [...]
An Image Changes Everything
By Meredith On June 4, 2012 · 3 Comments · In Baby, lissencephaly, Milestones, Motherhood, pachygyria, Parenting, Special Needs
“When you’re in your own realm, you have a strong sense of purpose, but there’s something about foreign territory that makes you want to loaf.” This was my Leo horoscope on May 25th, 2012…one day after Dr. Zimmer called with Lola’s MRI results. Are you ready for good, but shocking news? Lola does not have [...]
Day 20 – May 17th, 2011 “Lola has now figured out how to take her pacifier out of her mouth with her hands, but then she desperately wants someone to put it back in. You’ll learn soon enough, my love. Today has been good. Lola has not had a seizure since yesterday which is a [...]
The Last Phase of PT With Moisés – Lola Must Go to the World
By Meredith On November 18, 2011 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Motherhood, Parenting, Physical Therapy, West Syndrome
Sadly, today was Lola’s last appointment with Moisés. It was originally scheduled for next week, but Moisés is going to be in Mexico and we didn’t want to reschedule an appointment on one of our last few days in Costa Rica. So today was as good as any. We wanted to bring Moisés a thank [...]
We’ve Hit the Three Month Marker!
By Meredith On August 17, 2011 · Leave a Comment · In Baby, Blog, Infantile Spasms, Milestones, Motherhood, Parenting, Seizures, West Syndrome
Today Lola has been seizure free for three months!!! I use exclamation points because these are the important milestones in our world. I can easily recall a time where every waking moment was watching for seizures and when I couldn’t watch personally, I would videotape her so that I wouldn’t miss any. The grunts I [...]
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