The Elephant in the Room

Does Sebastian have the same genetic condition as Lola? Many wonder, but most won’t ask and I get it, I probably wouldn’t ask either. You don’t want to offend us by inquiring, but you’re curious and I would be too. We knew it was a possibility even before Sebastian was conceived and it was a thought in the very back of my mind when I was pregnant. But as of right now, we have no reason to believe Sebastian was affected by the same genetic condition as Lola. Heck, we don’t even know what that genetic condition really is, but he seems to be typically developing. He is still quite young, but thinking back to when Lola was his age – well there were plenty of signs that...
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The Neurogeneticist

“Amazing!” “Fantastic!” “Lucky!” These were among the promising words the neurogeneticist said to us on Friday as he discussed Lola’s undiagnosed condition. I remember asking Rob on Thursday (the night before the appointment) if he felt worried about what we’d find out. And ever so calmly, he said he didn’t feel worried at all and he just thought this was something that just happened to Lola. Oddly enough, I too, didn’t feel as worried as my normal worrying self would have usually felt. I just kept telling myself as long as it’s not terminal and as long as it’s not a degenerative disease than I can handle just about anything. And thankfully…oh thankfully…the doctor said just that “I don’t think she has a life threatening illness or some...
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