A Feeding Frenzy

While Lola’s skills seem to be blossoming on a daily basis, the one area that seems to be the most troublesome is in the self-feeding department. And naturally, have you ever tried to feed yourself with your eyes closed? I mean, we know Lola can see, but the low vision proves to be a challenge when it comes to feeding time. Lola does great with large items that are easy for her to hold, but if there is any type of odd texture (for instance – a banana) she simply wants to mash it into an oblivion. Out of curiosity, I checked out a feeding class for kids with disabilities. Typically for an eight week class with the child going once a week, it is $90 – $140...
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Lola is Awesome and Being Proactive

Today was a girl’s day out for Lola and me. I have been so busy working, I felt as if I had been missing out on quality time with my girl. We had intentions of going to the Central Library, but unfortunately it was closed today. So we went to the pool at our local Y Center instead. Is it just me or does my baby now look like a little girl? I know I’m biased, but what a doll! The pool was a lot of fun, but I also had other intentions for going. Lola’s therapy has been lacking because we have tapped out the exercises we were shown in Costa Rica. Lola is bored and while we are creative with her daily activities, she also needs...
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Lola Just as a Baby

I thought it would be good to write about Lola just as a baby. Not as a baby with West Syndrome, not as a baby with cortical visual impairment, not as a baby with some delays. Just a baby. Food: Lola has turned into a ravenous beast when it comes to food. It is crazy to think she was once on the “failure to thrive” line because the girl eats like a horse now. We don’t know what percentile she is in, but we know she is continuing to gain weight. Since her neuro is like our pediatrician, we don’t go to an actual pediatrician anymore. She can’t have vaccinations and Dr. Luna always measures her so there really is no point. The last at home weigh in...
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