Epilepsy Awareness #purpleforlola

On March 26th, we participated in an epilepsy awareness effort called Purple Day. Purple Day began in 2008 when a girl named Cassidy Megan had an idea to wear purple in an effort to raise awareness about epilepsy. Megan had struggled with epilepsy herself which is why she wanted to educate people about epilepsy, she hoped to debunk epilepsy myths and she simply wanted to start a conversation about epilepsy. It started out as a grassroots movement, but quickly turned into an international day of epilepsy recognition. Since epilepsy affects Lola’s life, we wanted to participate and we were blown away by the overwhelming amount of support we received! Friends, family and strangers from all over the country (and in Costa Rica!) wore their purple to help spread...
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A Smashing Success!

On Sunday, May 18th, Visually Impaired Preschool Services of Indiana (VIPS) joined 20 other area nonprofits at the Walking for Dreams 5K in downtown Indianapolis. The underlying theme of the event is “to help others help themselves” and that’s exactly what VIPS did on Sunday. With 98 walkers from Indiana, Kentucky and Michigan, VIPS raised over $8800! These are staggering numbers given it was VIPS’ first year at the event. I am pleased to share that Team Lola raised over $2000 for VIPS on Sunday! We received countless donations from family members, friends and people who heard about Lola’s story and wanted to help. I probably annoyed most everyone on Facebook as social media is the easiest way to get the message out, but I kept reiterating how...
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Hi – We’re Here

I realize it has been a few weeks since my last blog post and my only explanation to that is I have a young infant who loves his mama and a little girl who has found a freedom like she never knew. I see these blogging mothers who raise families, some work, in pictures their houses look clean and tidy and yet they still find time to create these amazing blogs. I can’t quite figure out how they do it all. I thought I would have plenty of time to dedicate to this blog after I had Sebastian. Lola would be in school, Sebastian would be an infant and I would spend parts of my day listening to music and writing my little heart out. I find that...
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How I Won My Daughter Back

Last week Lola was on spring break from the Indiana School for the Blind and Visually Impaired (ISBVI). I’ll be truthful and say I was not exactly thrilled with the idea of having both Lola and Sebastian home with me all day. I sort of lucked out when I had Sebastian because Lola was starting school that very same week. It was perfect timing actually. Lola would be at school for almost eight hours and that would give me uninterrupted time to bond with Sebastian. Remember, Lola wasn’t too keen on Sebastian’s arrival nor was she interested in sharing her mommy. In fact, she began to shun me in preference of her father. My heart was broken, but I was determined to win her love back and shockingly...
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The Elephant in the Room

Does Sebastian have the same genetic condition as Lola? Many wonder, but most won’t ask and I get it, I probably wouldn’t ask either. You don’t want to offend us by inquiring, but you’re curious and I would be too. We knew it was a possibility even before Sebastian was conceived and it was a thought in the very back of my mind when I was pregnant. But as of right now, we have no reason to believe Sebastian was affected by the same genetic condition as Lola. Heck, we don’t even know what that genetic condition really is, but he seems to be typically developing. He is still quite young, but thinking back to when Lola was his age – well there were plenty of signs that...
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