Epilepsy Awareness

November 1st marked the beginning of National Epilepsy Awareness Month so what does this mean? It’s time to learn more about the condition and help raise awareness. The CDC estimates that over 2 million people in the United States suffer from some type of epilepsy. They expect to have over 140,000 new cases reported next year. Unfortunately it is a condition that is rarely talked about even though it is reported that $15.5 billion is spent on medical costs as well as lost or reduced earnings. It is becoming an epidemic as we are seeing more cases of infant epilepsy (1:3200 live births). I’ll be honest and say I didn’t know a thing about epilepsy until my daughter was diagnosed with it. That is often how we go...
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Naive

Lola is doing great today. Thankfully we have not seen any more seizures since the episode yesterday. I spent the entire day near her as it was crucial to see if the seizures continued. Sleep last night was not exactly restful as every movement I heard, I quickly looked to see if she was seizing again. But who knows? Maybe it was just one episode. I guess I was a bit naive about the seizures coming back. I thought because she had responded so well to the medication the chances of her seizing again would be highly unlikely. So I can’t even begin to put it into words the utter shock I felt when I saw her tiny arm shaking yesterday. I am crying now as I write...
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