Goodbye — For Now

My very first Say Hola Lola post (actually it was called Live Love Travel Souls back then) was over six years ago. Never did I imagine this little ole’ blog would mean so much to me. It became a place to inspire, divulge, vent, relive, accept and document what has been the most rewarding yet one of the most challenging times in my life. I shared pieces of my life that probably belonged in a diary — not out in public, but I wanted to be real. I wanted parents of children with special needs to know they were not alone. But more importantly, I wanted to show that life does go on. And that life, while different than what you had expected, is full of love, happiness,...
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Well, That’s Surprising News

It’ll be two years in August since Lola showed her first sign of a clinical seizure — at least we thought it was a seizure. We had just left the dentist’s office and Lola was still recovering from the trauma of the appointment. I noticed her exhibiting some very strange behavior through my rear-view mirror. She hadn’t had a seizure in a couple of years, but like any parent of a child with epilepsy, I was always prepared for when that seizure-free streak could end. I pulled over and immediately began to videotape the episode which you will see below. I sent it on to Lola’s neurologist and while she wasn’t fully convinced it was a seizure, rather than having Lola endure yet another EEG, we put her...
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School’s Out for Summer!

Another school year has come and gone. It feels like just yesterday we were getting Lola ready for her first day back to school and now here she is ready to move on to a pre-k/kindergarten class. That thought in itself is enough to send me into a blubbering pool of tears, but I’m so very proud of how far she’s come this year. She continues to make such progress each and every day and I can’t thank her support system at the Indiana School for the Blind and Visually Impaired (ISBVI) enough for all they’ve done to foster her development. She had Mrs. Tubbs again this year and now that’s all we hear at night, “Tubbs! Tubbs!” It’s really sweet because clearly Mrs. Tubbs has had an...
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Here’s Why I Hate You, Seizures

I feel your presence. I know when you are lurking in the background. You are waiting for your opportunity. You wait until a moment when her body is vulnerable, when she is tired, when she is ready to let the world fall at the wayside as she drifts off to sleep. You have her all figured out and yet we know little about you. Except we know when you are coming. Your aura shows itself in two obvious ways. Some days you seem like you are trying so hard to breakthrough that she is literally coming unglued by the tiniest hint of your existence. She is hard to calm. She screams. She hits herself out of frustration. Her behaviors make her father and me prepare. We are extra...
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Holiday Happiness

Creating a memorable Christmas takes a lot of work. With each Christmas that comes and goes, it seems even more work goes into making the holiday magical, but in all honesty, I love each and every minute of it. With each passing Christmas comes new memories created with traditions that Rob and I are putting into place. As I sit here looking through pictures from the last month, I’m reminded just how special we try to make it for our children. And part of me can’t help but wonder if we aren’t making it special for ourselves as well. Perhaps we are trying to re-create a feeling we miss from our own childhoods. I’ll probably say it year after year, but this Christmas was my favorite thus far...
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