Ironic

Yesterday I was telling Rob that it’s strange Lola never looks at me while I’m feeding her solids. She will look everywhere but directly in front of her. So we aren’t doctors, but we do know a lot about Lola’s diagnosis’. We are guessing that she is in sensory overload. It’s as if the sounds, the taste of food and the vision is simply too much for her. It’s just like when I use the vision images for her to track. If I don’t say what the image is and make the appropriate sound than she tracks them. Yet if I overload her with noise while moving the image, she just starts looking elsewhere. So I’ve become very aware of how many senses Lola is using at one...
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A Trip to the Ophthalmologist

Yesterday I was hooked on the computer looking up everything related to cortical visual impairment (CVI). It was healthy googling as I was interested in learning more about the condition seeing that Lola has it herself. While most of the information I found stated that the vision impairment is only in the brain not in the eyes themselves, I still found a couple of references that suggested an eye exam for good measure. Still feeling hesitant, I decided to email Moisés (Lola’s PT) to get his expert opinion on the matter. He quickly replied with a “Yes!” as he felt it was crucial for her eyes to have a proper exam. Many times other problems that lie within the eyes are overlooked because a diagnosis of CVI is...
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Neuro, CVI and TV

Lola’s neurologist appointment went well today.  Dr. Luna began by asking me some basic questions about Lola’s progress and he followed that up with a wellness exam as well as a motor skills and eyesight test.  Right away he began spending an extra amount of time with her eyes.  I’m well aware that Lola does not have good eyesight so I suspected this would be a concern for him and sure enough it was.  He began to tell me about autistic children and their eye contact or lack of I should say.  He looked worried, but started asking me questions about how Lola responds to voices, sounds, being touched, playing.  I quickly told him that Lola LOVES being touched, she smiles and laughs, if she is crying she...
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