The Results

On Monday morning, without hesitation I called Lola’s neurologist in hopes to find out the results from her 24 hour Video EEG (VEEG). If you haven’t noticed, I am not a very patient person when it comes to my daughter and the healthcare industry. I want her to be as much of a priority to others as she is to me and I’ve had to realize that there are just certain things (like test results) that can’t be rushed. I spent the morning at work anxiously waiting for the call and it finally came…but unfortunately it was Dr. Zimmer’s nurse and not Dr. Zimmer herself. I’ll come back to why this differentiation is so important. The nurse said she had the preliminary results, but Dr. Zimmer was still...
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My Heart Belongs Here

I have to admit…while I was thrilled I was asked to be a part of the auction committee for the iBCF, I must be honest and say my heart wasn’t in it as much as I hoped it would be. It wasn’t because I didn’t want to help and it wasn’t because I didn’t believe in the cause we were raising funds for (because the funds were to help kids just like Lola)…it is simply because Visually Impaired Preschool Services (VIPS-Bloomington) is making a direct impact on my daughters life…an impact I couldn’t fathom possible. VIPS came into our lives when we felt no one could help us understand Lola’s vision impairment. You see, the ISBVI is great for blind and visually impaired kids that are three years...
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Yes – Neurologists Really do Smile!

Just when I was starting to get into my groove on Wednesday’s, I have already had to change up my beloved schedule. While I normally work on Mondays, I took the day off so I could be at Lola’s neurologist appointment with Dr. Zimmer. I have finally come to terms that I am indeed the crazy mother who must attend every single neurologist appointment…they mean that much to me. And while I sincerely trust my husbands ability to tell me “word for word” what Dr. Zimmer said, I just know that my worried mind rests much easier when I hear the words myself. But come on…it’s not like it is just any appointment. It’s not to check out a diaper rash, it’s not a therapy session and it’s...
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Right When You Least Expect It

Two nights ago, it had seemed like any other typical night. Rob was working on the computer as Lola and I practiced talking, making noises and just settling down before bed. Lola’s crib is still in our room which is clearly an issue I probably should address someday soon, but that’s a whole other blog post. Anyway, her crib is at the end of our bed and her new obsession is to bang her pacifier on the crib while sitting on the bed. She likes to look over into the crib and she gets crazy irate when she drops her paci in it because, unlike before, she can actually see her paci now. So as I watching Dancing With the Stars (one of my few guilty pleasures on...
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Mama Time

Today I’m writing this post from my iPad as I sit quietly observing, relaxing and relishing in this alone time. We enrolled Lola in a Social Group that takes place at Children’s Therapy Connection (CTC) every Wednesday for two hours for twelve weeks. Children’s Therapy Connection is the therapy agency that employs the therapists that come into our home each month to help with Lola. While the group is supposed to be for children 24 months and older, they made the exception for Lola as sister needs some help in the social department. There are a few therapists at the facility that help with the eight or so children that are there. In each session they try to focus on one area of socialization in which this week’s...
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