Currently viewing the tag: "cortical visual impairment"
We recently packed up the car and headed down to Bloomington, Indiana for another VIPS-Bloomington Play and Learn (PAL) get together. Originally, I was supposed to tap into my inner domestic goddess self and take a sewing class with a girlfriend, but I was feeling the need to be around my people. We hadn’t seen [...]
The Gift of Sight
By Meredith On February 23, 2013 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Happiness, low vision, Milestones, Motherhood, Parenting, Special Needs
“With this beautiful child, (and her amazing family), I have been allowed to witness a child’s visual system “turning on.” On a scale of 0-10 on the Cortical Visual Impairment scale with zero being no vision/light perception and 10 being normal or near normal functional vision, Lola was about a “2″ this past March/April, a [...]
A Different Perspective
By Meredith On December 15, 2012 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Family, Happiness, low vision, Milestones, Motherhood, Parenting, Special Needs, West Syndrome
Anyone who knows me knows that I am a creature of habit. I think, by default, most of us are. I like staying within my comfort zone because it is safe and it helps my neurotic brain feel like it is somewhat in control. Unfortunately this behavior has trickled over to Lola, I think in [...]
The Results
By Meredith On November 14, 2012 · Leave a Comment · In Blog, Cortical Visual Impairment, indianapolis, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
On Monday morning, without hesitation I called Lola’s neurologist in hopes to find out the results from her 24 hour Video EEG (VEEG). If you haven’t noticed, I am not a very patient person when it comes to my daughter and the healthcare industry. I want her to be as much of a priority to [...]
My Heart Belongs Here
By Meredith On October 22, 2012 · 1 Comment · In Baby, Blog, Cortical Visual Impairment, Happiness, indianapolis, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs, West Syndrome
I have to admit…while I was thrilled I was asked to be a part of the auction committee for the iBCF, I must be honest and say my heart wasn’t in it as much as I hoped it would be. It wasn’t because I didn’t want to help and it wasn’t because I didn’t believe [...]
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