Phase Seven of PT – Cause and Effect

Yesterday Lola had occupational therapy with Melissa. Melissa is still testing Lola’s eyesight to try and figure out where her strengths and her weaknesses are. She is looking for signs of color preference as well as if Lola can see better when objects are in her peripheral vision or directly in front of her. Once she has an idea as to what and how well Lola is seeing, she can begin to cater the exercises for Lola so that she can get the most out of therapy. [frame align=”center”][/frame] [frame align=”center”][/frame] Melissa began with a sing-along-song in Spanish while she used the bright colored gloves for Lola to follow. I think Lola was more into the song than the moving gloves as once the music was off she...
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Some inspiration

When Lola was first diagnosed, I joined a group on Facebook for other parents with children who had West Syndrome or Infantile Spasms.  At that point I was looking for any type of valid information and I figured what better way than to talk to parents themselves.  Well, I got scared after reading their posts.  Since West Syndrome has such a broad spectrum it is nearly impossible to compare any two children.  Needless to say, I steered away from the site even though something in me didn’t want to “unlike” the group.  I wanted Lola’s journey to be available, but I couldn’t bring myself to read the stories because many of them don’t have happy endings and with that I panicked.  The child doesn’t respond to the medication,...
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