I’m Feeling Title-less

So often in this blog, Lola’s condition and progress is the main subject of the content. I happily provide this information as I think it is important not only for our family and friends to stay updated with her life, but I also think it is crucial for other families to see Lola’s life with lissencephaly and West Syndrome in hopes to share some inspiration. But lately, Lola’s life with these conditions has not been an ever present part of our daily lives which is why I have steered away from blogging about every minuscule detail. No longer do I wake up each morning and think about lissencephaly or seizures. Sure it crosses my mind, but Lola is blossoming right before our eyes and you just kind of...
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I’m a Loser Blogger

Sorry kids, but damn life has been busy. Between the packing, the cleaning, the good-byes, the continuous therapy for the girl, the tidying up loose ends and everything else that goes along with moving. . .well this little old blog has been neglected and I apologize for that. So what’s new? – Lola is still a rock star. – I am still a nervous wreck. – My husband is just his usual calm collected self. – Our dogs have no idea what is about to hit them. – While neither will admit it, I can tell this move is starting to make my Mom and Steve sad. – We played BINGO on Saturday for four hours. – I didn’t win jack. – I am stoked to eat a...
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The Last Phase of PT With Moisés – Lola Must Go to the World

Sadly, today was Lola’s last appointment with Moisés. It was originally scheduled for next week, but Moisés is going to be in Mexico and we didn’t want to reschedule an appointment on one of our last few days in Costa Rica. So today was as good as any. We wanted to bring Moisés a thank you gift, so I headed to this cute little store in Ciudad Colon called Organica. It is a juice/snack bar, but she also sells everything from organic chocolate, hammocks, soaps, teas and a lot of yoga related items. Remembering that Moisés was into yoga, I found him Mala Beads. He was thrilled with the memento and immediately put them on as we told him he was to think of Lola every time he...
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Ultima Cita con Melissa

On Saturday we had our last appointment with Melissa and I must admit it was pretty sad. She was probably wondering why I was teared up, but Melissa and Moisés have done wonders for Lola. They truly are the reason for Lola’s amazing progress. Sure we ourselves work with Lola all day long, but it was their tools and guidance that enabled us to help our daughter. They are true professionals, but they make you feel like you are indeed part of their team. I only hope we find therapists as compassionate and caring as the ones we have found here in Costa Rica. It had been almost three weeks since we had last seen Melissa and she was thrilled to see the improvement in Lola’s vision. She...
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Halloween and Happiness

I know we’ve been absent for a few days, but Rob and I have begun the tedious task of preparing to move. While we still have a month before we board that plane back home, we would like to actually enjoy our final weeks with our family and friends rather than scrambling around to get everything in order. We only have two more weeks of work and then we are libre! I want to soak up that time with my Mom and Steve because as excited as I am to go home, I’m sure going to miss them. So not only have we been working at the hotel, we’ve also been getting medical records translated, ordering Lola’s mountain of medication we intend to bring back, trying to sell...
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