Backspacing and Blank Screens

Tonight as I sit here at the computer, I’m telling Rob that I just can’t seem to get my thoughts down in a blog post. It’s as if I have much too share, but every time I begin typing I quickly hit backspace, backspace, backspace until there is nothing but a blank screen again. I suppose this so-called “writer’s block” is running parallel with Lola’s undetermined diagnosis. We had one before and although lissencephaly was a hard diagnosis to swallow…at least we had one. But now Lola’s medical life has taken another unexpected turn when the lissencephaly diagnosis was retracted by a MRI performed here in the U.S. It’s as if someone is hitting backspace and all we are left with is yet another blank screen. I guess...
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The Best Surprise Ever!

After a long day of work, I came home to Rob exclaiming he had a surprise for me. Selfishly, I’m thinking “an iPad?”, or maybe “a Macbook?” or another early birthday present that comes from the Apple world? But what was waiting for me was better than any piece of cool technology. What Rob rushed in to give me was one of the best surprises I have ever had in my life. He showed me pictures of Lola pulling herself to standing for the very first time!! Then her legs got a bit unsturdy but she wasn’t going down without a fight…she kept trying to hold herself up. Lola actually pulled herself to standing today…not once, but twice! Now we aren’t sure if today was a “two” time...
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Stronger, Walker, Bigger and Superstitious

“Lola stood upright much more today on her own. Did not need much extra sensory input today. Trying to pull to stand at surface from sitting – needs only balance help.” This was another great report from Lola’s physical therapist on Tuesday! Usually Lola needs a bit of a push to get up on her feet, but she surprised us both when she stood right up on her own. She then proceeded to balance at the bin for over a minute until her tired out legs just collapsed. But she just continues to get stronger every session and her PT always comments on how amazing her improvement is. [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”1″ style=”0″][/column] I definitely think part of Lola’s drive to...
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Just Be Honest

Blame it on the heat, but all I want to do these days is stay inside, put my jammies on early and snuggle with my little babe. You know you’re getting old when you are excited to have nothing to do on a Friday night except hang with your kid. Too bad it’s just after seven and my date for the evening is already asleep. Sadly…I’m probably not too far behind her! We’ve had a good week and Lola is amazing us each and every day. She had two fantastic reports from her therapists this week where both commented on how much her hand use has improved and how attentive she was during her sessions. The days of needing continuous input through practices such as bouncing have all...
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The Anat Baniel Method

A couple weeks ago, I was moseying around the “Special Needs” section at Barnes and Noble. While I don’t exactly know what Lola’s special need is, I was up for a bit of insight and what better place to look than at books. A midst the overwhelming stacks of books about Autism – that seems to be the most written about diagnosis in the special needs world, I found a book crammed in between. It was called, Kids Beyond Limits – Breakthrough results for children with autism, Asperger’s, brain damage, ADHD and undiagnosed developmental delays. Perfect, I thought. Lola is now classified as a child with an undiagnosed developmental delay since her lissencephaly diagnosis was retracted. I read the back of the book and I read a couple...
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