Let’s Ride, Lola!

You may remember Lola was competing in Friendship Circle’s Great Bike Giveaway for the chance to win a Rifton adaptive bike. Unfortunately she didn’t win a bike through the voting portion of the contest, but because she had at least 100 votes (she actually had over 1200!) she still had a chance to win a bike through the raffle…and she won! We were elated with joy because the outpour of support Lola received from family members, friends, neighbors and even complete strangers was simply astounding. She had so many people rallying behind her to win this bike because they knew the impact it would have on her life. We can’t express our gratitude enough for helping make this dream come true for our daughter. She now has the...
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I Run 4 Lola

“I run because I can. When I get tired, I remember those who can’t run, what they would give to have this simple gift I take for granted, and I run harder for them.” This quote was on a meme that runner, Tim Boyles, shared online. A man named, Michael, who has Down Syndrome, saw the meme and replied, “You can run for me anytime!” And from that exchange, the idea for I Run 4 Michael came to fruition. I Run 4 Michael is a non-profit organization that matches athletes of all levels with individuals who have special needs. The athlete dedicates their workout (whether it be a jog, a marathon, a swim, a bike ride or whatever) to their buddy. Many times the athletes find great inspiration...
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Here’s Why I Hate You, Seizures

I feel your presence. I know when you are lurking in the background. You are waiting for your opportunity. You wait until a moment when her body is vulnerable, when she is tired, when she is ready to let the world fall at the wayside as she drifts off to sleep. You have her all figured out and yet we know little about you. Except we know when you are coming. Your aura shows itself in two obvious ways. Some days you seem like you are trying so hard to breakthrough that she is literally coming unglued by the tiniest hint of your existence. She is hard to calm. She screams. She hits herself out of frustration. Her behaviors make her father and me prepare. We are extra...
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Lola Needs Your Help!

Dear Friends of Say Hola Lola, One year ago, someone told me about Friendship Circle’s Great Bike Giveaway because she thought Lola would be a good candidate to win an adaptive bike. Well at that time Lola was so close to being able to push the pedals of her small Radio Flyer tricycle that I honestly didn’t think she would need an adaptive bike. I let the idea go. Yet here we are one year later and, unfortunately, Lola still doesn’t have the hang of pedaling a bike. She needs help. She needs help that can only be given to her through the use of an adaptive bike. At school she has an opportunity to ride an adaptive bike which she loves and is able to do so...
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Come Stroll Down Memory Lane – A Birthday Post

Warning! Plethora of pictures! I’m almost a month late with the Lola birthday post, but that seems to be the story of my life lately. Lola turned five-years-old on January 4th and I’m still pinching myself with disbelief! I’ve had so many emotions with this birthday and I can’t seem to figure out why. There’s something about five that says she’s well on her way to school dances, shaving her legs, screaming “I hate you” and everything else teenage-related. All right so I’m getting a bit ahead of myself, but she’s getting bigger which scares the hell out of me yet makes me look forward to all of the good stuff that’s just right around the corner. Five years ago, I was afraid for her future. I didn’t...
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