Mama Time

Today I’m writing this post from my iPad as I sit quietly observing, relaxing and relishing in this alone time. We enrolled Lola in a Social Group that takes place at Children’s Therapy Connection (CTC) every Wednesday for two hours for twelve weeks. Children’s Therapy Connection is the therapy agency that employs the therapists that come into our home each month to help with Lola. While the group is supposed to be for children 24 months and older, they made the exception for Lola as sister needs some help in the social department. There are a few therapists at the facility that help with the eight or so children that are there. In each session they try to focus on one area of socialization in which this week’s theme is “Turn Taking”. Last week they did water play and Lola loved it!

During the last hour of the Social Group, Lola’s physical therapist comes in and works with Lola in the social setting. We’ve found that Lola’s ability to pull to stand and her ability to stand alone is much better in a surrounding that is not her bedroom. I think it helps that Rob nor I are present during the session as our presence tends to be distracting for Lola. CTC has different tables and surfaces which has proved to be beneficial in Lola’s quest to stand which is why we chose to do her PT there.

I must say, I’m digging this alone time. I’ve found a little Starbucks right around the corner, I bought a keyboard for my iPad and I’m excited to have two hours to do things like a blog post without interruption, to answer emails in a timely manner and to just enjoy my peaceful mama time. I’m realizing just how important this time is and I’m thankful to have the opportunity to take it without guilt.

In the coming months, we will be updating the look of the blog as well as the layout. In the past few weeks, I’ve gotten a number of emails from parents, grandparents and/or caregivers of children who have just been diagnosed with West Syndrome or Cortical Visual Impairment. It’s those emails of people looking for a glimmer of hope that encourage me to continue blogging which is why I’m choosing to reevaluate the way I blog and how the blog functions. I want to reach as many people as I can with Lola’s story so that when parents are frantically trying to find a resource that actually offers hope rather than despair they will see Lola and her amazing journey. They can read about my emotional ups and downs so they can be reassured it is normal to have crazy emotional days, that it does indeed get better over time and that they will be able to handle the curveballs life has thrown them. Over time, I will add more resources via books I’ve read, doctors we’ve visited, therapies that are or are not working, toys or items we find beneficial and websites that offer accurate and updated insight.

With all of that being said, I would like to hear from you. What would you like to see more of on the blog? What information do you feel the blog is lacking? What do you find helpful? Any thoughts, ideas and suggestions are welcome. I thank all of you readers for your continuous support and encouragement.

If are interested in being a guest blogger or would like to be a sponsor please email me at:

Now if you’ll excuse me…I have only 40 more minutes of my mama time and I’m going to enjoy every second of it. Have a blessed and beautiful day!