Phase Seven of PT – Cause and Effect

Yesterday Lola had occupational therapy with Melissa. Melissa is still testing Lola’s eyesight to try and figure out where her strengths and her weaknesses are. She is looking for signs of color preference as well as if Lola can see better when objects are in her peripheral vision or directly in front of her. Once she has an idea as to what and how well Lola is seeing, she can begin to cater the exercises for Lola so that she can get the most out of therapy. [frame align=”center”][/frame] [frame align=”center”][/frame] Melissa began with a sing-along-song in Spanish while she used the bright colored gloves for Lola to follow. I think Lola was more into the song than the moving gloves as once the music was off she...
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Question From Chile

[quote style=”1″]Amazing, I just read bits of your story and am thrilled to find out mora about Lola’s treatment. I study physical therapy in Chile and I have seen child with West syndrome too. From those who were left to their own luck because parents wouldn’t bother and to those who are very much loved like your daughter. Believe me when I say this, she is going to recover and live a perfectly good life. In neurological diseases there’s nothing more valuable than time, you have to catch the disease at the most early stage, like was Lola’s case, and the recovery will be extraordinary. Yes she will have difficulties in some aspects of her life, but she will be an amazing child. Saludos![/quote] Answer Wow – waking...
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So how is the girl?

I’m not one to brag about every little thing that Lola does, but I must say she was so good during the entire trip.  She adapted to each new place as if it were nothing.  She slept in five different beds with ease.  She traveled on planes and in cars for extremely long periods of time and rarely voiced that she was uncomfortable.  The few times that she did indeed cry, it was simply because her little mouth was hurting from the teething she was experiencing.  I am so proud of my little traveler! It’s funny, but being away from most of her therapy tools (we brought what we could) kind of made you forget that she does indeed have a disability.  I can’t tell you how many...
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Phase Four of PT – Evaluating the Vision

Yesterday Lola had her occupational therapy with Melissa.  Since recently being diagnosed with cortical visual impairment, Melissa decided to do an evaluation of Lola’s eyesight.  I’d say she did quite good considering how poorly she did with Dr. Luna on Friday.  Melissa was impressed with Lola’s ability to hold her gaze steady as most babies with CVI usually have a very scattered gaze.  While she may easily get distracted, she was rather quick with responding to the flashlight, following the light and she even followed the lightbox before Melissa turned it on.  Lola did amazing and Melissa thought with intensive therapy, she would go on to have normal eyesight someday.   We are to use a flashlight with many different colored attachments to see if Lola has a...
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In this video, Melissa is working hard to keep Lola’s focus on the black and white image.

In this video, Melissa is working hard to keep Lola’s focus on the black and white image.  This was the third image Melissa had used and you can see that Lola begins to get easily distracted.  We were told always to introduce the object from left to right.  The paper object should be transferred to a harder surface (such as a folder) and should never be laminated as the plastic can show reflections.  It should remain about an arm length away from the baby’s gaze and it should always be slowly moved.   Here is a link to similar objects that Melissa gave to us: http://baby.zorger.com/baby.zorger.com.newborn.pdf...
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