Improvements and Much “More”

Lola girl is finally over her first cold and the second top tooth is ever present which means…our happy baby is back! [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”1″ style=”0″][/column] We have witnessed such changes in Lola this past week. There is a level of awareness that is emerging in really all aspects of her life. She is becoming aware of her body and its movement. She watches her hand as she waves it by or she’ll look at her toes as they wiggle. The other day at lunch, I snapped this photo of Lola observantly watching as her finger tapped the table. She’s also much more purposeful as she plays. Of course she still bangs everything in an effort to hear a noise...
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“Normal” Never Sounded so Good

Well first off we have BIG news to share…Lola’s EEG came back normal! Thankfully there were no signs of seizure activity which means that either the medicine is working or Lola is simply not having seizures. It is too soon to wean her off of the Trileptal as seizures could still do significant damage, but the fact that she is still seizure free is an excellent sign. We were told the doctor would call if she wanted Lola to have a 24 hour EEG to determine if Lola is having seizures as she sleeps, but the fact she hasn’t called yet leads me to believe that Lola is simply living a seizure free life. We are incredibly grateful for all of the extra love and prayers you sent...
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Therapy Began

I had been anticipating Tuesday since we said our good-byes to Moises (Lola’s Costa Rican PT) this past November. I worried Lola would fall behind without the help of Moises and Melissa as we simply didn’t know what was to lie ahead in her future yet we knew we were seeing something awaken within Lola thanks to their team. So the long drawn out process it took for Lola to get approved for First Steps was agonizing. But then something happened I didn’t expect (and shame on me for not thinking so)…Lola began to blossom developmentally without the help of any therapist or team. She just started to get it. She taught herself how to sit up on her own, how to sit up from the lying down...
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Last Step with First Steps

Yesterday we had an in-home meeting with our service coordinator from First Steps. Ms. Davis came out to welcome Lola into the program, explain to us what to expect next and finally she wrote up a 90 day therapy plan that Lola’s therapists will try to adhere to. We were to come up with short term goals for Lola which included everything from creeping to crawling to learning how to stack toys and much more. Lola was advised to have a physical therapist, an occupational therapist and a developmental therapist who will focus on her vision. Each therapist will come into our home on a weekly basis for one hour per session. So that means Lola will get three hours of therapy a week, in our home and...
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First Steps Evaluation

In the world of a one year old, they don’t know that it is actually their birthday. They may understand that their parents are ridiculously cheesy for some reason, they may be excited about the presents they get to open and they will especially love the cake they get to indulge in, but for the most part…it’s just another day. So when we were asked if today would be a good day to have the therapists come out to evaluate Lola, we happily replied “yes”. Two therapists came to our house at 10:30 this morning to take a look at Lola. They simply wanted to observe her as she played all while asking us numerous questions regarding Lola’s life. We told them all about Lola’s long medical history...
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