In Other’s Words

Is everyone ready for Christmas? Or Kwanzaa? Or Hanukkah? Or whatever it is that you might celebrate! We just finished up opening our presents this evening as we are off to visit my in-laws for Christmas. It couldn’t have felt more right being in our own home, playing our traditional Vince Guaraldi Charlie Brown Christmas and learning about Christmas traditions from each others past. Lola was more interested in opening the cabinets in the kitchen rather than opening her presents, but we still enjoyed ourselves nonetheless. I’ll post pictures of our evening when we return, but I wanted to give you all an update on our girl. Tonight This morning (I fell asleep hands on keyboard and all last night) I thought I would do something different and...
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Slow and Steady

My apologies for not keeping up with life with Lola. We recently found out the results from Lola’s first round of genetic testing and those results came back normal. This should be good news, right? Well, it should be good news and I mean it is good news, but what had me in a stricken panic all last week was what has haunted me from the very first time Lola had her first seizure…the unknowns scare the hell out of me. This news rocked me emotionally into someone I hadn’t been in a very long time. In truth, I was a mess. I began to Google, I sobbed uncontrollably, I looked at Lola as if she were a science experiment trying to pinpoint what exactly her diagnosis was...
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Backspacing and Blank Screens

Tonight as I sit here at the computer, I’m telling Rob that I just can’t seem to get my thoughts down in a blog post. It’s as if I have much too share, but every time I begin typing I quickly hit backspace, backspace, backspace until there is nothing but a blank screen again. I suppose this so-called “writer’s block” is running parallel with Lola’s undetermined diagnosis. We had one before and although lissencephaly was a hard diagnosis to swallow…at least we had one. But now Lola’s medical life has taken another unexpected turn when the lissencephaly diagnosis was retracted by a MRI performed here in the U.S. It’s as if someone is hitting backspace and all we are left with is yet another blank screen. I guess...
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A Visit with my Mom

Last week my mom was here for a short five day visit. We had such a good time just catching up, spending time with Lola, eating lots of yummy meals and of course…shopping! While I love the time we got to spend together, it seems to get harder every time we have to say good-bye. For selfish reasons, I wish that she lived closer. I’m at the point in my life where I long to learn about domestic things from my mom such as when to plant perennial bulbs, how to get my grass to grow thicker and how to make my grandmas fried chicken for Rob. We would go on walks throughout the neighborhood and she would point out tips for my future gardening days. It’s those...
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