What Life Means Today

Some years ago, this blog began as a way to stay connected with family and friends while Rob and I embraced our new life in Costa Rica — it was actually called Live Love Travel Souls. I then became pregnant with Lola so I thought I’d blog about the healthcare system in Costa Rica and raising a baby in a foreign country. And then over a course of time, life changed drastically when Lola was diagnosed with infantile spasms (a rare form of epilepsy), cortical visual impairment and global developmental delays. The blog morphed into Say Hola Lola. When Lola began to have seizures, countless medical appointments, endless diagnostic testing, a daily regime of medication and therapies to help her get strong both physically and mentally, I scoured...
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An IEP Success Story

When you have a child with special needs, you are aware and ultimately prepared about the early childhood education intake process. First the public schools are notified when a child in their district is almost three years old and that child has some type of delay (physically, cognitively, speech, language, etc). Mandated by the Individuals with Disabilities Education Act (IDEA), the child must be evaluated by the public school system in an effort to put that child in the most appropriate school setting as well as offered in-school therapeutic services – if a child qualifies – under what is called an Individualized Education Program (IEP). The IEP is specifically designed for the child by a team of professionals at the school. It not only ensures the child has...
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You Don’t Get to ‘Ding’ My Kid

Unfair to judge placement

×Warning: Not suitable for young readers as this post may will contain profanity. Please bear with me folks. I just need to get this off of my chest. Not only for my sake, but for parents/grandparents/caregivers to realize that certain actions, verbiage and projections by others (even if they are so-called professionals) are simply unacceptable. Period. Last week Lola had her evaluation by the public school system. This evaluation was for therapists, teachers and other special education professionals to be able to determine what services/goals are appropriate for Lola as she enters preschool when she turns three years old. Now this evaluation took place on a Thursday, Lola was just getting over being incredibly sick so I knew the evaluation would be skewed because she just wasn’t feeling...
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Alternative Therapies

Theraplay Indianapolis

** I have been trying to post this for a week now but the entire household had/has fallen ill with as my husband puts it “ravaging toddler flu”. Last week I had just about had it with therapies for Lola. She had everything from her traditional physical, speech and occupational therapy, but then she also had hippotherapy and patterning therapy. I’m also enrolled in a speech savvy program offered by Lola’s First Steps provider. We are busy people. And I mean real busy. But in truth, I have no one to blame this on other than myself — and I’m OK with that. Ever since Lola began having seizures two years ago, she has been enrolled in some type of therapy (yes…even in Costa Rica). Rob and I...
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A Quick Update

My oh my…where to begin? So much has happened during my absence…so many good things to share. In that short time, we have sold our beloved home in Butler-Tarkington, we bought a new house in the Irvington area (a really cool, urban, community-driven neighborhood), we moved (I’m so proud of my husband for moving us himself) and we have been enjoying each and every moment in making this new place our home. I will post pictures soon and will share all of the joys of this new place, but for now I wanted to tell you about the little girl that you all come back here to read about…our Lola. How is Lola? If just one word could describe her, it would be: awesome. Last night as Rob...
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