Currently viewing the category:
"West Syndrome"
Celebrating Me is Celebrating Being Lola’s Mom
By Meredith On May 15, 2013 · Leave a Comment · In Blog, Cortical Visual Impairment, Family, Happiness, indianapolis, Infantile Spasms, Milestones, Parenting, Seizures, Special Needs, West Syndrome
For me, Mother’s Day began on Saturday this year as I was scheduled to work on Sunday. Really, I feel like it’s Mother’s Day every day as my wonderful husband is always sure to make me feel special no matter if it is a holiday or not. Saturday felt like a crisp fall day rather [...]
Just One of Those Days
By Meredith On April 11, 2013 · Leave a Comment · In Blog, Family, low vision, Motherhood, Parenting, Special Needs, West Syndrome
Yesterday as I was sobbing to my mother about how much it pisses me off that Lola has to work so hard to achieve her milestones and how I was beginning to feel helpless as her mother, she stopped me and said “maybe you should write about it”. And as I sit here ready to [...]
A Quick Update
By Meredith On March 20, 2013 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Happiness, indianapolis, low vision, Milestones, Motherhood, Occupational Therapy, Parenting, Physical Therapy, Seizures, Special Needs
My oh my…where to begin? So much has happened during my absence…so many good things to share. In that short time, we have sold our beloved home in Butler-Tarkington, we bought a new house in the Irvington area (a really cool, urban, community-driven neighborhood), we moved (I’m so proud of my husband for moving us [...]
Trying New “Methods”
By Rob On February 13, 2013 · Leave a Comment · In Baby, Blog, indianapolis, Milestones, Parenting, Physical Therapy, Pregnancy, Special Needs
It is interesting how life has a way of laying out a path for you especially when you are seeking a road less travelled. It was last June when I stumbled into the “Special Needs” section at Barnes & Noble…a store I rarely visit, but just happened to tag along into that particular day. I [...]
The Neurogeneticist
By Meredith On January 30, 2013 · Leave a Comment · In Baby, Blog, Cortical Visual Impairment, Costa Rica, Infantile Spasms, low vision, Milestones, Motherhood, Parenting, Seizures, Special Needs
“Amazing!” “Fantastic!” “Lucky!” These were among the promising words the neurogeneticist said to us on Friday as he discussed Lola’s undiagnosed condition. I remember asking Rob on Thursday (the night before the appointment) if he felt worried about what we’d find out. And ever so calmly, he said he didn’t feel worried at all and [...]
Follow Us
Visit our Tumblr Blog
Find Us on Facebook
Popular Discussion Topics
Help Promote Our Site
Raise Awareness About Lola’s Condition
Tags
baby birthday blog brain breastfeeding cortical visual impairment costa rica cute dad development family friends grandma happiness happy home hope husband indiana indianapolis Infantile Spasms labor lissencephaly lola love low vision michigan milestones mom mother motherhood neurologist Occupational Therapy pachygyria parenting partial lissencephaly physical therapy pregnancy seizures sleeping special needs swimming toddler vision west syndrome