Lola Needs Your Help!

Dear Friends of Say Hola Lola, One year ago, someone told me about Friendship Circle’s Great Bike Giveaway because she thought Lola would be a good candidate to win an adaptive bike. Well at that time Lola was so close to being able to push the pedals of her small Radio Flyer tricycle that I honestly didn’t think she would need an adaptive bike. I let the idea go. Yet here we are one year later and, unfortunately, Lola still doesn’t have the hang of pedaling a bike. She needs help. She needs help that can only be given to her through the use of an adaptive bike. At school she has an opportunity to ride an adaptive bike which she loves and is able to do so...
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Lil’ Melon Baby Knee Pads Giveaway!

Lil' Melon Baby Knee Pads Giveaway

From the moment I found out I was pregnant with Lola, my maternal instincts quickly kicked in. My new job in life–to protect. I watched the types of food I ate, I didn’t allow myself to be around smoke, I didn’t take any medications that weren’t prescribed, I did everything in my power to protect my growing child. That’s what we do as parents, right? We love, we nourish, we care for and we protect our children. That need to protect has evolved into various forms. When Lola began to roll, I made sure she was never close to an edge. When she began to eat solids, I made sure her bites were small enough so she didn’t choke. When she began to crawl, I began to baby-proof...
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And So The Transition Begins

A couple of weeks ago, we moved Lola into her very own big girl bed. We considered many options in regards to a bed for her. Was she ready to move out of a crib? Would she be safe in a raised toddler bed? Should we buy a toddler mattress to put on the floor first? Should we consider a twin size mattress on the floor? After many long discussions, Rob and I decided we would move Lola to a twin mattress that would stay on the floor. Lola is a long girl and we would often hear her hit the sides of her crib which would inadvertently disrupt her sleep. We did not feel that Lola was ready to sleep in a raised bed as her comprehension...
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Posy Lane

When we first began this blog, it was simply a way to stay in contact with our friends and family as we embarked on our journey in Costa Rica. Little did I know, we’d get pregnant, have a baby and that amazingly awesome baby would have some challenges in her life. What once began as silly scribblings about life has turned into not only a place to document Lola’s extraordinary existence, but it has become a resource for people from all over the world. Parents looking for hope in the darkest of days when their beloved child has just been diagnosed with West Syndrome, mothers yearning for a virtual friend who can say in all honesty “I know what you’re going through,” and others who just admire watching...
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