A Visit with my Mom

Last week my mom was here for a short five day visit. We had such a good time just catching up, spending time with Lola, eating lots of yummy meals and of course…shopping! While I love the time we got to spend together, it seems to get harder every time we have to say good-bye. For selfish reasons, I wish that she lived closer. I’m at the point in my life where I long to learn about domestic things from my mom such as when to plant perennial bulbs, how to get my grass to grow thicker and how to make my grandmas fried chicken for Rob. We would go on walks throughout the neighborhood and she would point out tips for my future gardening days. It’s those...
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Improvements and Much “More”

Lola girl is finally over her first cold and the second top tooth is ever present which means…our happy baby is back! [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”0″ style=”0″][/column] [column size=”1-3″ last=”1″ style=”0″][/column] We have witnessed such changes in Lola this past week. There is a level of awareness that is emerging in really all aspects of her life. She is becoming aware of her body and its movement. She watches her hand as she waves it by or she’ll look at her toes as they wiggle. The other day at lunch, I snapped this photo of Lola observantly watching as her finger tapped the table. She’s also much more purposeful as she plays. Of course she still bangs everything in an effort to hear a noise...
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In All Honesty

Last night my mind wandered off to a place I hadn’t allowed in to go in a long time…I began to think about the far distant future for my Lola. Yesterday Rob, Lola and I went to the Developmental Disability building to fill out an application for a waiver in an effort to make sure Lola is taken care of as she ages. The waiver offers many services for the developmentally disabled such as home assistance, home modification help, entrance to assisted living homes, wheelchairs and much more. The current waiting list is 10 – 12 years as there is no money in the State for these services, but if something were to happen to Rob or I, Lola would sort of be grandfathered into the system if...
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“Normal” Never Sounded so Good

Well first off we have BIG news to share…Lola’s EEG came back normal! Thankfully there were no signs of seizure activity which means that either the medicine is working or Lola is simply not having seizures. It is too soon to wean her off of the Trileptal as seizures could still do significant damage, but the fact that she is still seizure free is an excellent sign. We were told the doctor would call if she wanted Lola to have a 24 hour EEG to determine if Lola is having seizures as she sleeps, but the fact she hasn’t called yet leads me to believe that Lola is simply living a seizure free life. We are incredibly grateful for all of the extra love and prayers you sent...
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An EEG and an Afternoon

This morning we were up bright and early to head down to Riley Children’s Hospital for Lola’s first EEG in the United States. I had been to two EEG’s with Lola in Costa Rica, so I was interested to see how the two locations would differ. Have you ever seen such a cute pilot before? We were immediately called back and the nurse began to wrap Lola up like a little burrito in order to restrain her arms. Most of you that read this blog know very well Lola does not like any type of restraint (hugs included) therefore we knew it could go one way or the other. Either she would scream and protest or she would actually enjoy it given her early days of being swaddled....
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