The New New Neuro

Yesterday Rob took Lola to go see a new neurologist, Dr. Jennifer Zimmer, out of Riley Hospital for Children. You may remember, we were not impressed with the last neurologist and decided to find someone who showed a genuine interest in the care of our daughter. While I was not able to attend due to work commitments, Rob gave me a full detailed report of the appointment. Dr. Zimmer began the appointment by thoroughly examining Lola. The usual measurements were taken (weight, height, head circumference) and then she took a close look at her spine, her feet, her abdomen as well as her eyes. She went through a detailed history of Lola’s background with Rob and asked numerous questions about her care in Costa Rica, the tests that...
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Developmental Pediatrician

Today Lola had an appointment with Dr. Tom Lock who is a developmental pediatrician at Riley Hospital for Children. At this point in the game you sort of go into these appointments with little expectations as it comes as no surprise that Lola is developmentally delayed. But per the suggestion of one of Lola’s therapists, we thought it would be a good idea just to hear what he had to say. Seeing that we blew Lola’s general pediatrician away with our detailed knowledge of her conditions, we felt it would be nice to have someone understand the lingo we were speaking. Unfortunately we had to wait almost an hour for Dr. Lock to enter in which Lola was not in the mood to be playing anymore. She was...
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Enough About Me

How is Lola? Lola is awesome! I swear she learns something new every single day and we sit back just in awe of every little thing she accomplishes on her own. Sure we push her with therapeutic tools, but sometimes with developmentally delayed kids you have to just take a step back and let them flourish. Remember that line from my favorite children’s book, Leo the Late Bloomer? “A watched bloomer doesn’t bloom.” Well I whole-heartedly believe it to be true. She’ll get it when she’s ready and able. She may not be average on a developmental growth chart, but she’s still developing and that’s what matters. Plus average is such a mediocre term. Lola has this strong fascination with large objects such as doors, dressers, entertainment centers...
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Stepping Out in Style…Orthotics Style

This past week Midwest Orthotics and Technology Center called to state that Lola’s orthotics were ready. Seeing that I had missed the initial appointment due to work, I was still very curious as to how the orthotics would function. I have to admit I also had visions of Forrest Gump and the knee high braces he had to wear on his legs in an effort to walk correctly. I was prepared for anything, but was pleasantly surprised when I actually saw Lola’s orthotics. The orthotics tech took her time explaining to me about why Lola needs the orthotics and how they will help. Anyone that has been around Lola knows that she is a toe pointer. If we let her continue to do this, she would probably walk...
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El Museo

On Tuesday, Lola and I had a play date at the Indianapolis Children’s Museum with a friend and her son. The Children’s Museum is amazingly cool and I am excited that it is only a couple of miles away from our house. When we got there, we quickly realized the kids were on Spring Break as the place was a madhouse. It was rather loud and I worried about the noise being too much for Lola’s delicate senses. She retreated a bit in the beginning, but she soon adapted. A few months ago I probably would have felt a tinge of sadness seeing all of the kids Lola’s age crawl and probably walk. But Tuesday, I didn’t focus on what she couldn’t do. Instead I simply looked around...
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