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"pachygyria"
An Image Changes Everything
By Meredith On June 4, 2012 · 3 Comments · In Baby, lissencephaly, Milestones, Motherhood, pachygyria, Parenting, Special Needs
“When you’re in your own realm, you have a strong sense of purpose, but there’s something about foreign territory that makes you want to loaf.” This was my Leo horoscope on May 25th, 2012…one day after Dr. Zimmer called with Lola’s MRI results. Are you ready for good, but shocking news? Lola does not have [...]
Blogging
By Meredith On May 9, 2012 · Leave a Comment · In Blog, Cortical Visual Impairment, Infantile Spasms, lissencephaly, Motherhood, pachygyria, Parenting, Seizures, Special Needs, West Syndrome
My lack of posts only mean one thing…I am back to work. My mother reminded me that I have a lot of people following the blog now and while I am honored and thrilled to have such a following, I also feel the pressure of “staying on top of it”. I loved staying home with [...]
Another MRI and Another Visit
By Meredith On May 4, 2012 · 2 Comments · In Baby, Cortical Visual Impairment, lissencephaly, low vision, pachygyria, Parenting, Special Needs
On Wednesday we received a phone call from Lola’s new neurologist, Dr. Jennifer Zimmer. She personally called herself to tell us the MRI CD from Costa Rica was simply too hard for the radiologists to read. This means Lola will indeed have to have another MRI as Dr. Zimmer doesn’t want to give Lola an [...]
The New New Neuro
By Meredith On May 1, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, pachygyria, Seizures, West Syndrome
Yesterday Rob took Lola to go see a new neurologist, Dr. Jennifer Zimmer, out of Riley Hospital for Children. You may remember, we were not impressed with the last neurologist and decided to find someone who showed a genuine interest in the care of our daughter. While I was not able to attend due to [...]
Developmental Pediatrician
By Meredith On April 26, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, pachygyria, Parenting, West Syndrome
Today Lola had an appointment with Dr. Tom Lock who is a developmental pediatrician at Riley Hospital for Children. At this point in the game you sort of go into these appointments with little expectations as it comes as no surprise that Lola is developmentally delayed. But per the suggestion of one of Lola’s therapists, [...]
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