I Run 4 Lola

“I run because I can. When I get tired, I remember those who can’t run, what they would give to have this simple gift I take for granted, and I run harder for them.” This quote was on a meme that runner, Tim Boyles, shared online. A man named, Michael, who has Down Syndrome, saw the meme and replied, “You can run for me anytime!” And from that exchange, the idea for I Run 4 Michael came to fruition. I Run 4 Michael is a non-profit organization that matches athletes of all levels with individuals who have special needs. The athlete dedicates their workout (whether it be a jog, a marathon, a swim, a bike ride or whatever) to their buddy. Many times the athletes find great inspiration...
Continue reading...

Here’s Why I Hate You, Seizures

I feel your presence. I know when you are lurking in the background. You are waiting for your opportunity. You wait until a moment when her body is vulnerable, when she is tired, when she is ready to let the world fall at the wayside as she drifts off to sleep. You have her all figured out and yet we know little about you. Except we know when you are coming. Your aura shows itself in two obvious ways. Some days you seem like you are trying so hard to breakthrough that she is literally coming unglued by the tiniest hint of your existence. She is hard to calm. She screams. She hits herself out of frustration. Her behaviors make her father and me prepare. We are extra...
Continue reading...

Lola Needs Your Help!

Dear Friends of Say Hola Lola, One year ago, someone told me about Friendship Circle’s Great Bike Giveaway because she thought Lola would be a good candidate to win an adaptive bike. Well at that time Lola was so close to being able to push the pedals of her small Radio Flyer tricycle that I honestly didn’t think she would need an adaptive bike. I let the idea go. Yet here we are one year later and, unfortunately, Lola still doesn’t have the hang of pedaling a bike. She needs help. She needs help that can only be given to her through the use of an adaptive bike. At school she has an opportunity to ride an adaptive bike which she loves and is able to do so...
Continue reading...

Come Stroll Down Memory Lane – A Birthday Post

Warning! Plethora of pictures! I’m almost a month late with the Lola birthday post, but that seems to be the story of my life lately. Lola turned five-years-old on January 4th and I’m still pinching myself with disbelief! I’ve had so many emotions with this birthday and I can’t seem to figure out why. There’s something about five that says she’s well on her way to school dances, shaving her legs, screaming “I hate you” and everything else teenage-related. All right so I’m getting a bit ahead of myself, but she’s getting bigger which scares the hell out of me yet makes me look forward to all of the good stuff that’s just right around the corner. Five years ago, I was afraid for her future. I didn’t...
Continue reading...

Holiday Happiness

Creating a memorable Christmas takes a lot of work. With each Christmas that comes and goes, it seems even more work goes into making the holiday magical, but in all honesty, I love each and every minute of it. With each passing Christmas comes new memories created with traditions that Rob and I are putting into place. As I sit here looking through pictures from the last month, I’m reminded just how special we try to make it for our children. And part of me can’t help but wonder if we aren’t making it special for ourselves as well. Perhaps we are trying to re-create a feeling we miss from our own childhoods. I’ll probably say it year after year, but this Christmas was my favorite thus far...
Continue reading...