What Life Means Today

Some years ago, this blog began as a way to stay connected with family and friends while Rob and I embraced our new life in Costa Rica — it was actually called Live Love Travel Souls. I then became pregnant with Lola so I thought I’d blog about the healthcare system in Costa Rica and raising a baby in a foreign country. And then over a course of time, life changed drastically when Lola was diagnosed with infantile spasms (a rare form of epilepsy), cortical visual impairment and global developmental delays. The blog morphed into Say Hola Lola. When Lola began to have seizures, countless medical appointments, endless diagnostic testing, a daily regime of medication and therapies to help her get strong both physically and mentally, I scoured...
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Hi – We’re Here

I realize it has been a few weeks since my last blog post and my only explanation to that is I have a young infant who loves his mama and a little girl who has found a freedom like she never knew. I see these blogging mothers who raise families, some work, in pictures their houses look clean and tidy and yet they still find time to create these amazing blogs. I can’t quite figure out how they do it all. I thought I would have plenty of time to dedicate to this blog after I had Sebastian. Lola would be in school, Sebastian would be an infant and I would spend parts of my day listening to music and writing my little heart out. I find that...
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In Case You Missed the Big News…

I had planned to write this elaborate post about how amazing Lola is doing with her walking, but I have a little baby boy (two months today!) who is wanting to be near his mama. And today I’m choosing to embrace his need to be close because time is indeed flying by. I don’t want to be that mom who wishes she had put down the technology in order to be more present in her life. I want to be an active part of it. So I’ll simply let you see for yourself how well Lola is walking… I literally watch these videos several times a day. I’m so proud of our daughter and all of the hard work she has put in to achieve this incredible milestone....
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A Long Lola Update

It has been just over a month since Lola began attending the Indiana School for the Blind and Visually Impaired (ISBVI) and we couldn’t be more thrilled with the progress we are seeing in our little girl. Prior to attending ISBVI, Lola had been in a three day a week, couple hour a day program. While she was learning in that type of environment, we could tell she was craving more stimulation which is why we chose ISBVI. Lola attends the school five days a week for the entire day alongside four other kiddos in her class. She is in a play-based classroom yet there is also structured learning. They focus on Lola’s abilities not her disabilities which means the classroom setting is challenging but not overwhelming for...
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Bringing Sebastian into the World

×This is a day late as life just became too busy to get it published. Exactly one month ago today, Rob and I dropped Lola off at the sitters and told her she’d be a big sister soon. We kissed her goodbye and as we left tears returned to my already flooded eyes. I was just a couple days shy of being 41 weeks pregnant and per my doctor’s advice (for reasons I’m choosing to remain private about), I was going to induce labor. The decision had been made the day prior and for some reason, it wasn’t sitting well with me. While it was ultimately my choice, the thought of forcing our unborn child into the world made me feel somewhat guilty. I pictured our child all...
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