The Worried Mother

You know, I go back and keep re-reading the last post about Lola’s diagnosis. It’s as if I need to keep reminding myself that essentially nothing has changed. We simply have more information. This is good right? If it was good than why can’t I stop crying? Is it because it’s still fresh in my mind? Is it because now I feel like I really don’t know what to expect? Is it because I’m worried just as any other mother would be? Or is it my own struggle with PTSD that won’t allow me to just relax? I don’t know, but I feel like I’m hanging on by a tiny thread. Thank God for my husband who always seems to bring me back down to reality before I...
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Lola’s Diagnosis

Yesterday afternoon, Dr. Luna called to ask us to come in to his office later that evening. He said it wasn’t bad, but he simply couldn’t explain it in English on the phone. From what we could understand, Lola did not have a condition called septo-optic dysplasia. This is where part of the optic nerve has not formed properly and in some cases part of the brain called the septum pellucidum is absent. Many people with septo-optic dysplasia are considered to be legally blind and many have growth hormone issues. Dr. Luna seemed pleased that she did not have this. We also knew that Lola had a malformation in the visual cortex of her brain. We knew it was static meaning it would not adversely progress. The rest...
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