Why Lola Won’t Be Going to School This Year

Today is the first day of school for kids going to the Indiana School for the Blind and Visually Impaired (ISBVI). Lola would normally be waking up at 5:45 a.m. I’d be trying to get her to eat a little something before her long ride to ISBVI. She’d wait patiently outside, knowing the bus would be coming to pick her up soon. She’d ride with her friends and listen contently as her bus driver, Terri, and bus monitor, Toshua, sang to her. She’d be greeted at ISBVI by familiar faces and welcoming voices. She’d know she was back to her pre-summer routine. But today Lola is sleeping in. We will still rush around because nothing is more chaotic than corralling two young kids in the morning. We will...
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School’s Out for Summer!

Another school year has come and gone. It feels like just yesterday we were getting Lola ready for her first day back to school and now here she is ready to move on to a pre-k/kindergarten class. That thought in itself is enough to send me into a blubbering pool of tears, but I’m so very proud of how far she’s come this year. She continues to make such progress each and every day and I can’t thank her support system at the Indiana School for the Blind and Visually Impaired (ISBVI) enough for all they’ve done to foster her development. She had Mrs. Tubbs again this year and now that’s all we hear at night, “Tubbs! Tubbs!” It’s really sweet because clearly Mrs. Tubbs has had an...
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Lola Needs Your Help!

Dear Friends of Say Hola Lola, One year ago, someone told me about Friendship Circle’s Great Bike Giveaway because she thought Lola would be a good candidate to win an adaptive bike. Well at that time Lola was so close to being able to push the pedals of her small Radio Flyer tricycle that I honestly didn’t think she would need an adaptive bike. I let the idea go. Yet here we are one year later and, unfortunately, Lola still doesn’t have the hang of pedaling a bike. She needs help. She needs help that can only be given to her through the use of an adaptive bike. At school she has an opportunity to ride an adaptive bike which she loves and is able to do so...
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Thanksgiving Perspective

I think being a mom of a child with exceptional needs has given me a unique perspective on being thankful. While I’m thankful for all of my blessings on this Thanksgiving, I find that I’m equally as thankful each and every day of the year. It’s nice to have an entire day to ponder the meaning behind gratitude and how it weaves itself into my daily existence because I am indeed very grateful. But as a mother, a wife and, more importantly, a woman, I try to honor the things I’m thankful for all year round…and these two are at the top of that list. Lola has taught me to appreciate in a different way and embrace all that life has to offer. Because I surround myself with...
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Right Where She’s Supposed To Be

It’s been over three weeks since Lola started school and based on the lack of posts on this blog — well let that be an indication as to how busy our family is these days. We purposefully chose not to talk about school at length over the summer as Lola doesn’t quite grasp the concept of taking a summer break. But a couple of weeks before school was scheduled to begin we started to repeat trigger words like bus, school, Mrs. Tubbs, Melissa and backpack. We wanted to help refresh Lola’s memory of school and you could see the wheels turning in her head as we began to use the words more frequently. Since Lola goes to the Indiana School for the Blind and Visually Impaired (ISBVI), Registration...
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