And Just Like That

Its been two days since I posted about Lola’s one month seizure free milestone and as I said before, you just never know when a seizure will emerge. This morning just happened to be that day. Something seemed off about Lola this morning. She was unusually cranky, her vision was erratic (running into tables, large chairs, etc), she was extra mean to her brother and she was moaning/crying non-stop. This is a day when communication with words would have been stellar. We had no idea what was wrong. I hear parents complain that their kid talks too much and I want to punch them in the face. Too harsh? But seriously, I would have given anything for my daughter to have been able to articulate her frustrations this...
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I Lied About Being Able to Relax

“What do you do to relax and how do you know once you’ve achieved relaxation?” Simple question, right? I was sitting in a circle with maybe a dozen other people. All of us parents of children who have vision impairments among other ‘different-abilities’. For once, I didn’t feel vulnerable sharing pieces of me that I tend to tuck away until the time is right. We were all together for the annual Visually Impaired Preschool Services (VIPS) Family Retreat in Louisville, Kentucky. Lola was over at the Respite Camp and I was excited to be working at the Retreat as a VIPS employee. And while I am indeed an employee, I still and will always be a VIPS mom. Just as the other parents and caregivers in attendance, I’m...
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A Smashing Success!

On Sunday, May 18th, Visually Impaired Preschool Services of Indiana (VIPS) joined 20 other area nonprofits at the Walking for Dreams 5K in downtown Indianapolis. The underlying theme of the event is “to help others help themselves” and that’s exactly what VIPS did on Sunday. With 98 walkers from Indiana, Kentucky and Michigan, VIPS raised over $8800! These are staggering numbers given it was VIPS’ first year at the event. I am pleased to share that Team Lola raised over $2000 for VIPS on Sunday! We received countless donations from family members, friends and people who heard about Lola’s story and wanted to help. I probably annoyed most everyone on Facebook as social media is the easiest way to get the message out, but I kept reiterating how...
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Hi – We’re Here

I realize it has been a few weeks since my last blog post and my only explanation to that is I have a young infant who loves his mama and a little girl who has found a freedom like she never knew. I see these blogging mothers who raise families, some work, in pictures their houses look clean and tidy and yet they still find time to create these amazing blogs. I can’t quite figure out how they do it all. I thought I would have plenty of time to dedicate to this blog after I had Sebastian. Lola would be in school, Sebastian would be an infant and I would spend parts of my day listening to music and writing my little heart out. I find that...
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How I Won My Daughter Back

Last week Lola was on spring break from the Indiana School for the Blind and Visually Impaired (ISBVI). I’ll be truthful and say I was not exactly thrilled with the idea of having both Lola and Sebastian home with me all day. I sort of lucked out when I had Sebastian because Lola was starting school that very same week. It was perfect timing actually. Lola would be at school for almost eight hours and that would give me uninterrupted time to bond with Sebastian. Remember, Lola wasn’t too keen on Sebastian’s arrival nor was she interested in sharing her mommy. In fact, she began to shun me in preference of her father. My heart was broken, but I was determined to win her love back and shockingly...
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