Halloween Can Be ‘Tricky’

What a bizarre holiday you are, Halloween. 364 days a year we teach our children not to talk to strangers, not to go up to stranger’s homes and never to take candy from a stranger. Yet on this one day a year, all rules are obsolete. Instead we say, “Hey kids! Go ahead and talk to strangers. Go right up to their homes. And why yes, by all means, eat their candy!” For young children and especially children with special needs — it can be quite confusing. Last year the weather was dreadful in Indianapolis. It was sleeting, it was cold and there was no way I was going to make my then 3-year-old and 10 month old endure Trick-or-Treating. This year I really wanted both Lola and...
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Quease Fall, Don’t Go

“Outside, outside,” says Lola. It’s her new favorite word. It literally emerged from her vocabulary just this week. Up until a few days ago she’d say “bike” which ultimately meant she wanted to go outside. We’ve gotten really good at deciphering meanings behind her words. We used to have to pick up on her communication cues through all other avenues except for language, but she’s starting to use words more predominantly than actions. It’s been nothing short of astounding to witness. She has many more words in her back pocket that seem to appear out of nowhere. Some of them have quite complex meanings behind them and she’s starting to understand that they can be used in multiple scenarios. For example the word “off” — she uses it...
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A Letter To My Mom

Dear Mom, Your month long visit has come and gone. I’m sitting here looking through photos from your stay and they remind me of all the little adventures we went on. It’s funny because most children would cringe with the thought of their mother staying at their house for a long period of time, but we welcome it…in fact, we look forward to it. When you come back, you just fit in again. Six months can go by between visits and yet, you just know how to fill in the gaps. At times I feel guilty because you help out so much (just the other morning I was yelling at you to stop doing the dishes), but I have to remember that you wouldn’t do anything you didn’t...
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Epilepsy Awareness #purpleforlola

On March 26th, we participated in an epilepsy awareness effort called Purple Day. Purple Day began in 2008 when a girl named Cassidy Megan had an idea to wear purple in an effort to raise awareness about epilepsy. Megan had struggled with epilepsy herself which is why she wanted to educate people about epilepsy, she hoped to debunk epilepsy myths and she simply wanted to start a conversation about epilepsy. It started out as a grassroots movement, but quickly turned into an international day of epilepsy recognition. Since epilepsy affects Lola’s life, we wanted to participate and we were blown away by the overwhelming amount of support we received! Friends, family and strangers from all over the country (and in Costa Rica!) wore their purple to help spread...
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Sibling Rivalry is Driving Mom Crazy

Can I be honest with you? Yesterday may have been one of my worst days as a mom ever. Yep. Ever. What is it that makes some days tolerable and other days quite the opposite — dare I say abhorrent? But yesterday was just one of those days where I could do no right as a mom. Sebastian could have been a third walking leg as he never once let me go. Lola was upset that Sebastian was attached to me. Her inability to verbalize her unhappiness made her throw even louder tantrums. Her tantrums made Sebastian scream even louder. Those screams made me want to scream, but instead all I could do was just sob and pray that the day would end soon. I’m thankful I have...
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