B-I-N-G-O

Our good friend, Maria volunteers for the Lion’s Club of Costa Rica and this year they decided to hold a BINGO gathering in order to help raise money for things like wheelchairs, crutches, food and other essential items. Costa Ricans love BINGO and I have to admit…now I do too. You can win anything from an entire chicken to eggs to mattresses to nice candle holders and even money. Heck the last time I played, I won some tupperware and a lotto ticket. Anyone that knows me can tell you I am all about playing the lotto. Not only do you play, you get to eat good Costa Rican food too. And as Gringos, well we always get the funny stares because it is not a Gringo sport....
Continue reading...

Can’t Think of a Clever Title

We had a fussy baby this morning. I know some days I wake up pissed off at the world so it is only natural that a baby can feel that way too. Our usual morning routine of snuggles, giggles, food, medicine, diaper change and therapy was interrupted by a whole lot of fussing. Lola’s continuous river of drool leads me to believe it could be the teeth, but I think as parents we often say our kid is fussy because of teething. Sure it’s logical, but I also think it is used as an excuse because we don’t want to say our kid is fussy simply because the kid is fussy. So this morning I laid Lola on the floor in the office while I worked on emails....
Continue reading...

West Syndrome

My virtual friend, Bianca recently wrote a post about the experience her son Skylar had with West Syndrome. Skylar has a rare developmental birth defect called Schizencephaly. Bianca posted her seizure notebook and she spoke of the constant monitoring, the worry, the fear and many other emotions that comes along with having a child experience this rare form of epilepsy. It was only by chance we found each other in the Tumblr blogging world and I think I can speak for both of us and say it is so nice to have someone that understands the scary world of West Syndrome. I had a draft in my blog cue that was eerily similar. These are the logs Rob and I kept when Lola was first put on Prednisone....
Continue reading...

Only One More Left

Thursday my mom drove Lola and me to therapy with Moisés. It is hard to believe we only have one more session left with him. I’ve been a bit emotional lately and I was in tears telling him how much he has meant to our family. The physical strength and transformation we have seen in Lola is all thanks to Moisés. You could see the happiness he felt knowing how far Lola has come. His quote of the day was “she’s doing so great” which of course was like music to our ears. Lola spent most of the time vertical in what Moisés calls the “ligas”. This is crucial for Lola’s balance and it helps for her to understand the feeling of being upright. She did amazing! She...
Continue reading...

The Photo Shoot

Today our friend, Diana came over for our first family photo shoot. We had good intentions of photographs when I was pregnant, but life was too busy. We had even better intentions of photographs when Lola was a newborn, but again time just seemed to slip by. So Diana was adamant about taking pictures of us before we left for the U.S. and I’m so glad she stayed on us about it. Lola was a trooper given she had just woken up from a nap. It was hot out, I kept making her change outfits and based on the constant facial massages she was giving herself, it was obvious her teeth were bothering her. You know had it been a couple of months ago, I would have had...
Continue reading...